Product Description
This second edition of the most complete parent guide available, features detailed and precise medical information about solid tumor childhood cancers, including neuroblastoma, Wilms tumor, liver tumors, soft tissue sarcomas, and bone sarcomas. In addition, it offers day-to-day practical advice on how to cope with procedures, hospitalization, family and friends, school, social and financial issues, communication, feelings, and, if therapy is not successful, the difficult issues of death and bereavement. Woven among the medical details and the practical advice are the voices of parents and children who have lived with cancer and its treatments. As many parents have already found, advice from "veteran" parents can be a lifeline. Obtaining a basic understanding of topics such as medical terminology, how drugs work, common side effects of chemotherapy, and how to work more effectively with medical personnel can only improve the quality of life for the whole family suffering along with their child. Having parents describe their own emotional ups and downs, how they coped, and how they molded their family life around hospitalizations can be a tremendous comfort. Just knowing that there are other kids on chemotherapy who refuse to eat anything but tacos or who have frequent rages can make one feel less alone. Parents who read this book will encounter medical facts simply explained, advice to ease their daily lives, and tools to be strong advocates for their child. It also contains a personal treatment summary and long-term follow-up guide for your child to keep as a permanent record.

CUSTOMER REVIEWS (Average Customer Rating: 5.0 based on 6 reviews)

This book is a lifeline for a parent

I cannot overstate how helpful this book was to me. My daughter was diagnosed with Wilms (kidney) cancer 14 months ago. This book was given to me several days after her initial diagnosis and I turned to it many, many times over the long journey to recovery. Even today, with my daughter happily in remission, I turn to it for help in dealing with late side effects and the emotional consequences of the rollercoaster that is childhood cancer. Of all the books I have read over the past 14 months (and there have been many - I'm an avid reader), this one was absolutely the best. If I could, I would buy up all the copies and give it to every parent of a child with a solid tumor.
November 30, 2004

A must have

I am a Pediatric Oncology Nurse that buys these books to give to the newly diagnosised families. All of them have told me that it is a wonderful tool.
May 22, 2003

It explains all

This book was recommended to me after my daughter was diagnosed with nueroblastoma. It explains it all. The book is broken down by topic (ie radiation and chemotherepy) and also by tumor.
The language used was easy to understand. The book was my map through the world of childhood cancer.
October 20, 2001

Best resource available about kids with cancer!

If you have found yourself catapulted into the nightmare of having a child with cancer, this book will help you to understand much of the journey to come. No matter what stage your child is in treatment...beginning, middle, finished treatment, relapsed, or palliative...this book is an indispensible resource. Personal stories peppered throughout the book help you come to realize that you are not alone in this battle. This book also has a wonderful list of resources to help families through this hard time. Buy one for yourself, family members (especially in-laws!), your child's pediatrician, your child's teacher, and your closest friends so they can have a glimpse into what you and your child are facing and can help you along the way. This book should be given to EVERY parent when they hear those horrible words, "Your child has cancer..."
April 03, 2001

Childhood Cancer:A Paren't Guide to Solid Tumor Cancers

Candlelighters Childhood Cancer Foundation fully endorses this book and places it on the 'must have resource list' for any parent whose child is diagnosed with any type of solid tumor cancer. This comprehensive guide provides extensive information on the diagnosis, prognosis, procedures, treatment and side effects of neuroblastoma, Wilms Tumor, retinoblastoma, rhabdomyosarcoma and bone sarcomas. Included is a thorough explanation of the various chemotherapy drugs used in treatment and their common side effects. Detailed information on radiation therapy, surgery and bone marrow transplantation is also included. Additionally, the book provides practical advice to families on related issues such as nutrition, returning to school and the end of treatment. The book addresses the emotional impact that such a cancer diagnosis places upon the child, their family and friends and offers practical insight on how to cope. A comprehensive list of childhood cancer websites, support organizations and additional reading materials is listed at the back of the book. The authors'extensive interviewing of families who have 'walked down this road' offers hope to those whose 'journey' has just begun.
March 03, 2000

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