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| View Larger Image | Living with Genetic Disorder: The Impact of Neurofibromatosis 1
by Joan Ablon
| | List Price: | $110.95 |  | | Available: | Usually ships in 24 hours | | | | | Sales Rank: | 1826250 | | Studio: | Auburn House | | | Binding: | Hardcover | | Number Of Pages: | 216 | | Publication Date: | August 30, 1999 | | Publisher: | Auburn House |
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EDITORIAL REVIEWS |
Product Description
A description of the social, educational, and economic impact of living with a neurological genetic disorder, neurofibromatosis 1. The many unpredictable and potentially stigmatizing possible symptoms of NF1, which range from physical disfigurement to severe learning disorders, may have serious consequences in every aspect of daily life. NF1 was for many years wrongly diagnosed as the "Elephant Man's Disease." Ablon examines the psychosocial costs of this misdiagnosis and the ways in which stage, screen, and television parlayed "The Elephant Man" into the personification of the grimmist extreme of ugliness. This portrayal engendered fear and anxiety for affected persons and their families and also had an impact on the scientific and medical communities. Ablon analyzes the factors that affect individual positive adaptation to NF1 and the demands of American society, and offers suggestions for families, support systems, and health care providers for treatment of affected individuals. |
CUSTOMER REVIEWS (Average Customer Rating: 5.0 based on 1 review)
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Living with genetic disorder: The impact of Neurofibromatosi 
I would like more information about Neurofribrom- atisis because I have it and I need to learn more about it. Thank You
January 25, 2000 | |
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