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Muscular Dystrophy: theFacts
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Muscular Dystrophy: theFacts | Paperback

by Alan Emery (Author)

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Binding:  Paperback
Publisher:  Oxford University Press, USA
Edition:  2nd Edition
Page Count:  166 Pages
Publication Date:  June 15, 2000
Sales Rank:  1,081,163st

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EDITORIAL REVIEWS


Product Description
European Neuromuscular Centre, Baarn, The Netherlands. Discusses living with muscular dystrophy and coping with its physical effects. Written for people with this illness and their families, it answers many questions asked by those diagnosed with muscular dystrophy. Previous edition: c1994. Softcover.


CUSTOMER REVIEWS (Average Customer Rating: 3.5 based on 2 reviews)

ok on facts, light on sense by G. Miller (Berlin Deutschland) 2 Stars
September 13, 2005
The medical aspects are dealt with fairly accessibly, but troubles me is the author's tone throughout the book - patronising, and his tendency to make statements that belie an extraordinary ignorance of human beings. What kind of weirdo would write a sentence like "....of course, the death of a child is always tragic, even when it is expected"? There are a few such pronouncements in the book, but the whole thing is saturated with that strange arrogance that only doctors seem to manage - I think it comes from dealing so much with "the sick" and "suffering" family members, that they start thinking that doctors are some higher breed of "healthy" humans who are on earth to offer hope to poor unfortunates. I would not recommend this book for parents.

A great source of information 5 Stars
January 02, 2001
This book uses easy to understand language to explain the complexities of this group of disorders. It is a good first book for individuals and families faced with the likelihood or reality of a muscular dystrophy diagnosis.

SIMILAR PRODUCTS


Muscular Dystrophy in Children: A Guide for Families

Muscular Dystrophy in Children: A Guide for Families
by Irwin M. Siegel (Author)

Written for children with muscular dystrophy (MD) and their families, friends and teachers, this book is a guide through the often-frightening labyrinth of medical care that follows the diagnosis of MD. Forthright, clear, supportive and empowering, the book helps readers understand the significance of the signs and symptoms of the disease, treatment options, the disease's probable course and what may affect it, and choices in directing therapy. This incomparable guide covers:
...

Moonrise: One Family, Genetic Identity, and Muscular Dystrophy

Moonrise: One Family, Genetic Identity, and Muscular Dystrophy
by Penny Wolfson (Author)

In this riveting and thought-provoking memoir about her family, her son Ansel, and his progressive disability, Penny Wolfson embarks on a quest that explores special education, giftedness, prenatal testing, and the genes she shares with her mother, sisters, and son. While Moonrise is an eloquent narrative of one family, it also asks profound questions about our genetic selves.


The 2002 Official Patient's Sourcebook on Muscular Dystrophy

The 2002 Official Patient's Sourcebook on Muscular Dystrophy
by James N. Parker (Editor), Philip M. Parker (Editor)

This book has been created for patients who have decided to make education and research an integral part of the treatment process. Although it also gives information useful to doctors, caregivers and other health professionals, it tells patients where and how to look for information covering virtually all topics related to muscular dystrophy (also Distal muscular dystrophy; Duchenne's muscular dystrophy; Erb's muscular dystrophy; Facioscapulohumeral disease; Fukuyama syndrome; Gower's...

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