Product Description
The Scleroderma Book has long been considered the leading source of information for patients suffering with this disease. Now comes the Second Edition of this highly respected volume, extensively revised by Maureen Mayes, M.D., the leading authority in this field. Writing specifically for patients and their families, Dr. Mayes draws on her extensive experience treating scleroderma to provide up-to-date, practical information that will help patients manage their symptoms and improve their quality of life. Dr. Mayes begins with an easily accessible description of the basic facts, distinguishing between the many manifestations of the disease, ranging from localized scleroderma (small patches of hardened skin, most common in children, which tend to clear up over time) to systemic scleroderma, which can attack the lungs, the kidneys, and the blood vessels, and can be life threatening. Equally important, she offers sympathetic and reassuring advice on matters that often concern patients, such as the best course of action for those who want children, what to do if the disease affects your sex life, and what you can do to help your doctor treat your illness more effectively. The book concludes with a good humored, frank discussion about how to cope, day in and day out, with an uncertain future--how to be a "person living with" scleroderma, not a "victim suffering from" it. The new edition has updated chapters on the genetics of scleroderma and on new treatments for complications of this disease. Touching on virtually every aspect of this disorder, The Scleroderma Book provides a reliable source of information and reassurance for patients of any age and no matter how severe their form of the disease. Endorsed by the leading national advocate group, The Scleroderma Foundation

CUSTOMER REVIEWS (Average Customer Rating: 4.5 based on 14 reviews)

The Scleroderma Book by Jacqueline Corley (Hemet, California)

5 Stars
June 11, 2009
I've recently been diagnosed with Limited Systemic Scleroderma. This book opened my eyes to what the future might be for me. It answered a lot of questions I had. Just made me feel as though I have some control over this disease. WONDERFUL!!! For me Knowledge concerning my health is extremely important.

Best Scleroderma Book Ever by Lydia (Houston, TX)

5 Stars
December 02, 2008
This will teach and inform you, in layman's terms, everything you need to know about Scleroderma. I've read everything I could get my hands on about this horrible disease and this book is the best ever. Thank You, Dr. Mayes.

The Scleroderma Book by M. Novak (Thousand Oaks, CA)

5 Stars
June 04, 2008
The book was recommended to me and turned out to be as good as promised. An excellent resource for a basic, easy-to-understand-by-a-lay-person description of scleroderma, including its symptoms, variations, possible treatments, what to expect. My daughter was recently diagnosed with the disease and our family is gathering as much as information as possible to know what it is and how deal with it.

Disease Specific Information Easily understood by Patients by Sherry Messick (Cheltenham, MD United States)

5 Stars
October 24, 2002
Some books about scleroderma are clearly written with the medical community in mind and are way to technical for the average person. This book is directed to the average person and wrote in a way that can be easily understood by those who do not have medical experience. I highly recommend this book to every person with scleroderma and to ever person that is interested in learning the facts about this disease. Get your copy today!

comprehensive and clearly written

5 Stars
October 21, 2001
As a nurse practitioner, I felt that the info in this book was very comprehensive... I also felt that the language was well written in commonly-used descriptive terms, so that any lay person could also understand the content. Very helpful info and practical advice.

SIMILAR PRODUCTS

	The First Year: Scleroderma: An Essential Guide for the Newly Diagnosed (The First Year Series) by Karen Gottesman (Author), M.D. Daniel E. Furst (Foreword) Scleroderma-a chronic autoimmune condition that causes hardening, thickening, or tightening of the skin and attacks the heart, lungs, kidneys, and gastrointestinal tract-is extraordinarily difficult to diagnose and can take a huge toll on the psychological well-being of the individual. From the first moment of her diagnosis, author Karen Gottesman took charge and educated herself on every aspect of her condition. Now, as a "patient-expert," she guides those newly diagnosed step by step through...
	Scleroderma: The Proven Therapy that Can Save Your Life by Henry Scammell (Author) Scleroderma, which affects as many as 400,000 Americans, starts off like skin cancer but is far more deadly. This new edition is updated with new information about the best therapy for this disease, including the results of the landmark first, and a new, second clinical trial of the only therapy to report reversal and remission of this deadly disease.
	A Place to Go: Complete Healing of Body and Spirit by Maureen Taylor (Author) For two years, author Maureen Taylor's health slowly deteriorated as she was pursued by a relentless but mysterious illness. It disfigured her face, turned her hands into claws, and left her skin as hard as a board. In 1988, she finally learned the name of the disease that was ravaging her body: scleroderma. Scleroderma was more than just a disease it was also Taylor's teacher. It taught her that the world of medicine is a confusing labyrinth and the only map worth using belongs to the...
	Voices of Scleroderma by International Scleroderma Network (Author) “I highly recommend this book for patients, caregivers, and medical professionals who want quality medical information and support for scleroderma and related illnesses. “Access to high quality reliable modern information is crucial to patient well-being and outcomes. The realization that ‘you ARE NOT alone’ has therapeutic value in its own right. “The nonprofit International Scleroderma Network (ISN) and its website at www.sclero.org enjoys a well-deserved reputation for...
	Connective Tissue Diseases: Holistic Therapy Options--Sjoegren¿s Syndrome; Systemic Sclerosis - Scleroderma; Systemic Lupus Erythematosus; Discoid Lupus Erythematosus; Secondary and Primary Raynaud¿s phenomenon; Raynaud¿s Disease; Polymyositis ¿ Dermatomyositis by Hannelore Helbing-Sheafe (Author) Hannelore Helbing-Sheafe’s constant struggle with her health was a powerful motivator to investigate possible ways to help herself and others. The focus of her practice was always on finding the cause of the problem and instructing patients in using correct nutrients and/or natural medicine and therapy to correct and reverse existing health problems. Her main focus has been to seek balance in all body systems. Connective Tissue Diseases - Holistic Therapy Options provides valuable...