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| View Larger Image | Moonrise: One Family, Genetic Identity, and Muscular Dystrophy | Paperbackby Penny Wolfson (Author)
| List Price: | $13.95 | |
| | Binding: | Paperback | | Publisher: | St. Martin's Griffin | | Page Count: | 256 Pages | | Publication Date: | May 01, 2004 | | Sales Rank: | 1,429,214st |
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EDITORIAL REVIEWS |
Product Description
In this riveting and thought-provoking memoir about her family, her son Ansel, and his progressive disability, Penny Wolfson embarks on a quest that explores special education, giftedness, prenatal testing, and the genes she shares with her mother, sisters, and son. While Moonrise is an eloquent narrative of one family, it also asks profound questions about our genetic selves. |
CUSTOMER REVIEWS (Average Customer Rating: 5.0 based on 5 reviews)
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bravery in the flesh  4 Stars
March 29, 2004
This book should appeal to readers who value the hard, loving truth-telling ability of the author, the mother of Ansel, a child with muscular dystrophy. I first read her essay of the same name in Best American Essays, and the book delivered a more edgy, tough potrait of the family. Admirable, credible, and hopeful, the mother is one tough customer, and so is her son. That is the key to surviving and thriving despite the woes of this debilitating, chronic illness. Ansel and his mom (and dad, and siblings) are a real family, in the best sense of the word.
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Everything happens for a reason by Abadisms (New York, New York United States)  5 Stars
May 29, 2003
...I was curious and did read it. And I am very glad that I did. You are a very strong person and have been both a great mother and great friend for Ansel. I was touched and moved by how honestly you expressed your ongoing thoughts and feelings towards the disease and the struggle to deal with it as a mother, a wife and a friend. Indeed it is sad that Ansel or anyone for that matter has to suffer such an illness in life, but not everyone is as lucky to have a mother as strong, defiant and loyal as you, who has such a powerful means of expressing herself through writing. Your whole family must be very proud of you, especially Ansel. I am also impressed by your observations and descriptions of Ansel and how brave and strong he has been all of his life....Ansel is an optimistic skeptic, and brave at that (his will not to give up, I noticed, was something he inherited from you). Many of us, including myself, can learn from someone like him. And in the words of Ansel, "everything happens for a reason."
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Inspiring 5 Stars
April 04, 2003
Moonrise is a powerful book, beautifully written, full of forceful oppositions-health and disability, despair and joy, science and poetry. Were it a writer's imagined construct, it might be considered too calculated, too balanced between the life forces we control and those that control us. However, Moonrise is not a novel, rather a book that recalls the truism that life can be stranger than fiction. Penny Wolfson has written from the depths of her own experience a perfect parable, an inspiring story of the life of her son Ansel, rich in humor, strikingly full of unnerving Dantean imagery, and imbued with tremendous pathos. Though ostensibly concerned with Duchenne's muscular dystrophy, Moonrise is actually a story about the condition of life and its inherent struggles, speaks to anyone who ponders the eternal mysteries of why we live and how we live. In addition to describing the sobering details of genetic determinism and the wrenching realities of watching a child's body degenerate, Wolfson analyses and celebrates family and all its myriad complexities.
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a good book for all ages (exept maybe little kids) 5 Stars
March 14, 2003
let me let you know, take me seriously with the stars, I really love the book. Penny sounds like someone very kind to everyone and everything, she treats everyone the right way. I still think you won't take me seriously, but you're probably right ignoring me.
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Beautiful writing 5 Stars
March 07, 2003
This book starts out more like a mystery or spy novel than the memoir it is. We are first introduced to the author, her husband and baby in a poetic first chapter. Next we are introduced to the "villain" (which turns out to be the genetic disease muscular dystrophy) only later to find out that it is not only slowly killing her beautiful child Ansel, but is also hiding inside her newly pregnant sister! We are then led through various vignettes where she describes her son's diagnosis, various treatments, and his transformation from an unusually attractive baby into a disabled child. Wolfson also describes her quest to understand the genetics of this disease where she not only gains insight into its biochemistry but also into the complicated history and dynamics of her own family. As the book concludes we find yet another transformation of Ansel from a troublesome disabled child to a quirky, intellectually gifted teenager. When I got to the end of the book I wanted another chapter to tell me what happens next to this remarkable mother and son. I was left feeling very moved, not with pity but with admiration. Talk about turning a bunch of lemons into lemonade! Anyone with chronic disease lurking in their family (and who doesn't) has got to read this book.
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SIMILAR PRODUCTS |
| The Book of Kehls
by Christine Kehl O'Hagan (Author)
When Bridget Moore left Ireland in 1865, she never suspected that along with her trunk and rosary beads, she was bringing Duchenne Muscular Dystrophy to New York City. It wasn't until Bridget was a grandmother, one who had buried four of her grandsons, that she realized she'd brought MD to the States, a disease that would haunt her family for generations. Years later, her great-grandchildren grew up under the elevated trains of Jackson Heights, Queens—and one of them was Christine Kehl...
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| Muscular Dystrophy: theFacts
by Alan Emery (Author)
European Neuromuscular Centre, Baarn, The Netherlands. Discusses living with muscular dystrophy and coping with its physical effects. Written for people with this illness and their families, it answers many questions asked by those diagnosed with muscular dystrophy. Previous edition: c1994. Softcover.
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| Muscular Dystrophy in Children: A Guide for Families
by Irwin M. Siegel (Author)
Written for children with muscular dystrophy (MD) and their families, friends and teachers, this book is a guide through the often-frightening labyrinth of medical care that follows the diagnosis of MD. Forthright, clear, supportive and empowering, the book helps readers understand the significance of the signs and symptoms of the disease, treatment options, the disease's probable course and what may affect it, and choices in directing therapy. This incomparable guide covers:
...
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| Spelling Love with an X: A Mother, a Son, and the Gene That Binds Them
by Clare Dunsford (Author)
A memoir of raising a child with a genetic disorder
When her son, J.P., was first diagnosed with fragile X syndrome, the most common inherited cause of mental retardation, Clare Dunsford discovered that she and three of her four siblings carried the fragile X premutation and had therefore passed on the full mutation to J.P. and several of his cousins. An English professor by training, Dunsford draws on poetry to explore her new identity as a “mutant” and reflect on her life with...
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| Muscular Dystrophy (The Facts)
by Alan E.H. Emery (Author)
The muscular dystrophies are a group of genetic diseases that severely affect children and adults. For sufferers and their family, the illness presents enormous physical and psychological challenges. Written specifically for people with muscular dystrophy and their families, this book answers many of the questions asked about how and why muscular dystrophy occurs, and how it will affect the life of a recently diagnosed child.
As well as presenting the reader with advice and an...
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