Product Description
Childhood Brain & Spinal Cord Tumors, the most complete parent guide available, includes detailed and precise medical information about both benign and malignant brain and spinal cord tumors that strike children and adolescents. In addition, it offers day-to-day practical advice on how to cope with procedures, hospitalization, family and friends, school, social and financial issues, communication, feelings and, if therapy is not successful, the difficult issues of death and bereavement. Woven among the medical details and the practical advice are the voices of parents and children who have lived with cancer and its treatments. As many parents have already found, advice from "veteran" parents can be a lifeline. Obtaining a basic understanding of topics such as medical terminology, how drugs work, common side effects of chemotherapy, and how to work more effectively with medical personnel can only improve the quality of life for the whole family suffering along with their child. Having parents describe their own emotional ups and downs, how they coped, and how they molded their family life around hospitalizations can be a tremendous comfort. Just knowing that there are other kids on chemotherapy who refuse to eat anything but tacos or who have frequent rages can make one feel less alone. Parents who read this book will encounter medical facts simply explained, advice to ease their daily life, and tools to be a strong advocate for their child. Includes extensive resources and a pull-out medical record-keeper.

CUSTOMER REVIEWS (Average Customer Rating: 5.0 based on 5 reviews)

Very helpful. Covers all the bases. by Jennifer Hollywood (Maryland)

5 Stars
June 11, 2007
This book is very informative if your child has a brain or spinal cord tumor. It is broken into easy to read sections. The quotes from people who already lived through this were priceless. I helps put things in perspective for you. It gives you tips on how to deal with unusual circumstances. It has lots of resources for contacting other organizations on the web as well. Very helpful for me and my family.

Finally ..... something at MY level! by Jillian Earle (Kapiti Coast, New Zealand)

5 Stars
March 06, 2002
When our 5 year old daughter was diagnosed with a Brainstem Glioma, the hospital and Child Cancer Foundation (in New Zealand) gave us books to read, if you wanted to wade through all the technical stuff, personally I couldn't cope with it all. Then when I was looking at sites on the internet, I read about this book. I had a look at it at Amazon, and thought about it for a few days, trying to weigh up if it would be relevant to NZ'ers. I finally took the plunge and got it. I am soooo relieved that I did. Suddenly I was able to read something and actually get some benefit from it. The inserts from the parents are wonderful - suddenly I don't feel so alone, and the advice is universal. It relates to anyone in any country going through this nightmare.

This book is a "must have" for caregivers by Mj (Pelham, NH United States)

5 Stars
January 29, 2002
As a parent to a child who had a brain tumor, I feel that this book covers all the major topics. When our son was diagnosed back in '98, I searched for such a book but none existed. Our son has since passed away but we are thankful that this book is available - particularly for newly diagnosed families. We purchased copies for our public library and for The Jimmy Fund in memory of our three year-old son, Kevin Kirsch. Thank you for writing this much needed guide. It will be a resource for caregivers and medical professionals alike.

The Best by John F. Ott (Huntington Beach, Ca USA)

5 Stars
December 17, 2001
Having a daughter die of a Brain Stem Glioma, this book would have helped tremendously.

This one is a must for parents of kids with brain tumors by A. Musella (Hewlett, NY USA)

5 Stars
December 11, 2001
This book is loaded with information you NEED to know to help you understand the disease, what the doctors are talking about, sources of information, the problems that pop up along the way, as well as tips to help make the child much more comfortable. This should be the first book you read on the subject.

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