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| View Larger Image | The Official Patient's Sourcebook on Huntington's Disease: A Revised and Updated Directory for the Internet Age | Paperbackby Icon Health Publications (Author)
| List Price: | $28.95 | | | Available: | Usually ships in 24 hours |
| | Binding: | Paperback | | Publisher: | ICON Health Publications | | Page Count: | 220 Pages | | Publication Date: | September 25, 2002 | | Sales Rank: | 1,392,158st |
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EDITORIAL REVIEWS |
Product Description
This book has been created for patients who have decided to make education and research an integral part of the treatment process. Although it also gives information useful to doctors, caregivers and other health professionals, it tells patients where and how to look for information covering virtually all topics related to huntington's disease (also Artificial insemination; Chronic Progressive Chorea; Chronic progressive hereditary chorea; Degenerative Chorea; Hereditary Chorea; Hereditary Chronic Progressive Chorea), from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on huntington's disease. Given patients' increasing sophistication in using the Internet, abundant references to reliable Internet-based resources are provided throughout this sourcebook. Where possible, guidance is provided on how to obtain free-of-charge, primary research results as well as more detailed information via the Internet. E-book and electronic versions of this sourcebook are fully interactive with each of the Internet sites mentioned (clicking on a hyperlink automatically opens your browser to the site indicated). Hard-copy users of this sourcebook can type cited Web addresses directly into their browsers to obtain access to the corresponding sites. In addition to extensive references accessible via the Internet, chapters include glossaries of technical or uncommon terms. |
SIMILAR PRODUCTS |
| Learning to Live With Huntington's Disease: One Family's Story
by Sandy Sulaiman (Author)
Huntington's Disease (HD) is a hereditary illness passed on via a defective gene. There is a fifty per cent chance of inheriting it from a parent and there is yet no cure. "Learning to Live with Huntington's Disease" is one family's poignant story of coping with the symptoms, the diagnosis and the effects of HD. This book presents the struggles and strengths of the whole family when one member loses their future to a terminal illness. Told by the sufferer and other significant family members,...
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| Huntington's Disease (The Facts)
by Oliver W J Quarrell (Author)
Huntington's disease is a genetically inherited condition which results in severe nerve-cell damage in the brain. The hereditary and debilitative nature of the disease means that many people are involved either directly or indirectly by this condition. The recent identification of the faulty gene involved has made the diagnosis of this condition simpler. The majority of people develop the disease between the ages of 35 and 55 years, so for those aware of their genetic risk there are dilemmas to...
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| Huntington's Disease: The Facts
by Oliver Quarrell (Author)
Huntington's Disease is a genetically inherited condition, the result of severe nerve-cell damage in the brain. Due to the recent identification of the gene involved, and the debilitating nature of the disease, a great many more people are now affected either directly or indirectly (families and carers) by this condition. The majority of people develop the disease between the ages of 35 and 55, so for those that are aware of a genetic inheritance, there are enormous problems to confront -...
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| The Test: Living in the Shadow of Huntington's Disease
by Jean Barema (Author)
A memoir of the five years Barema spent in anguish over the decision to take the test for Huntington's disease. Barema recalls his long, emotionally wrought journey from deciding to take the test to receiving the results; he describes how his daily life was consumed by questions and fear; and he movingly depicts the patience of his wife and the compassion of his doctor. This is both a suspense story and a vivid portrayal of the devastation Huntington's disease causes the families it strikes....
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| The Woman Who Walked into the Sea: Huntington's and the Making of a Genetic Disease
by Alice Wexler (Author)
When Phebe Hedges, a woman in East Hampton, New York, walked into the sea in 1806, she made visible the historical experience of a family affected by the dreaded disorder of movement, mind, and mood her neighbors called St.Vitus's dance. Doctors later spoke of Huntington’s chorea, and today it is known as Huntington's disease. This book is the first history of Huntington’s in America. 
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