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| View Larger Image | The Official Parent's Sourcebook on Rett Syndrome: A Revised and Updated Directory for the Internet Age | Paperbackby Icon Health Publications (Author)
| List Price: | $28.95 | | | Available: | Usually ships in 24 hours |
| | Binding: | Paperback | | Publisher: | ICON Health Publications | | Page Count: | 184 Pages | | Publication Date: | November 18, 2002 | | Sales Rank: | 2,668,693nd |
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EDITORIAL REVIEWS |
Product Description
This book has been created for parents who have decided to make education and research an integral part of the treatment process. Although it also gives information useful to doctors, caregivers and other health professionals, it tells parents where and how to look for information covering virtually all topics related to rett syndrome (also Autism, Dementia, Ataxia, and Loss of Purposeful Hand Use), from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on rett syndrome. Given parents' increasing sophistication in using the Internet, abundant references to reliable Internet-based resources are provided throughout this sourcebook. Where possible, guidance is provided on how to obtain free-of-charge, primary research results as well as more detailed information via the Internet. E-book and electronic versions of this sourcebook are fully interactive with each of the Internet sites mentioned (clicking on a hyperlink automatically opens your browser to the site indicated). Hard-copy users of this sourcebook can type cited Web addresses directly into their browsers to obtain access to the corresponding sites. In addition to extensive references accessible via the Internet, chapters include glossaries of technical or uncommon terms. |
CUSTOMER REVIEWS (Average Customer Rating: 2.0 based on 1 review)
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A better choice would be ... by David P. Krivoshik (Rural Hunterdon County, NJ, USA)  2 Stars
March 29, 2007
Unfortunately any book for the Internet Age will start to become obsolete before it is even printed. While this book provided a good presentation and relevant resources, in 7 years many of them are dated.
If you have a daughter with Rett Syndrome, a better resource is the virtual treatise on Rett Syndrome by Kathy Hunter, New Rett Syndrome Handbook, 2nd Edition (ISBN-10: 0977064409 ISBN-13: 978-0977064403). Kathy Hunter is not only the author but founded the International Rett Syndrome Association (IRSA) in 1984 with friends and families with individuals with Rett Syndrome. IRSA's first office was Kathy's kitchen table. I am privileged to have met Kathy & her daughter Stacie who turned 35 in May 2009. Kathy's passion, motivation & drive created an organization which is one of the only real resources for families with a daughter who has Rett Syndrome. A test to determine Rett Syndrome was only developed in December 1999. Rett Syndrome affects only 1 in every 10,000 to 15,000 girls. Our daughter has Rett Syndrome. When she was first diagnosed we were shocked and terrified, which over time turned to anger and frustration. Now we believe we are proactive and outspoken, although our effects pale to those of Kathy Hunter. Her book & and her organization IRSA are a must for anyone with a daughter with Rett Syndrome. The first edition, (ISBN-10: 0966952804 ISBN-13: 978-0966952803), although outdated by recent developments, is well worth reading even if you order the second edition from IRSA. Having seen and read parts of the second edition before publication, I can say it is even better, greatly expanded & updated.
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SIMILAR PRODUCTS |
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