| View Larger Image | Spinal Cord Injury: A Guide for Living (A Johns Hopkins Press Health Book) | Hardcoverby Sara Palmer PhD (Author), Kay Harris Kriegsman PhD (Author), Jeffrey B. Palmer MD (Author)
| List Price: | $45.00 | | Price: | $36.52 | | You Save: | $8.48 (19%) | | | Available: | Usually ships in 24 hours |
| | Binding: | Hardcover | | Publisher: | The Johns Hopkins University Press | | Edition: | 2ndnd Edition | | Page Count: | 376 Pages | | Publication Date: | April 25, 2008 | | Sales Rank: | 1,041,900st |
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EDITORIAL REVIEWS |
Product Description
Fully updated and revised, the second edition of Spinal Cord Injury is the definitive guide for people with SCI and their families. Combining first-person accounts with up-to-date medical information, the book addresses all aspects of spinal cord injury -- recovery and coping, sex and family matters, transportation and housing, employment and leisure -- and reviews the challenges encountered by people with spinal cord injury throughout their lives. The authors explain how spinal cord injury affects physical functioning and the impact of physical changes on emotions and social life. They offer a holistic approach to recovery that incorporates all aspects of living and emphasizes achieving optimal health, personal fulfillment, and meaningful family and social relationships. The new edition of this helpful book includes a completely revised chapter on recovery and regeneration research, stem cell research, and activity-based therapies. New information is offered on medical and rehabilitative care of children and adolescents as well as preventative health measures for people of all ages living with spinal cord injury. The book includes expanded ideas and resources for socializing, travel, sports and recreation. |
Amazon.com Review
Fully updated and revised, the second edition of Spinal Cord Injury is the definitive guide for people with SCI and their families. Combining first-person accounts with up-to-date medical information, the book addresses all aspects of spinal cord injury--recovery and coping, sex and family matters, transportation and housing, employment and leisure--and reviews the challenges encountered by people with spinal cord injury throughout their lives. The authors explain how spinal cord injury affects physical functioning and the impact of physical changes on emotions and social life. They offer a holistic approach to recovery that incorporates all aspects of living and emphasizes achieving optimal health, personal fulfillment, and meaningful family and social relationships. The second edition of this helpful book also includes a completely revised chapter on recovery and regeneration research, stem cell research, and activity-based therapies. New information is offered on medical and rehabilitative care of children and adolescents as well as preventative health measures for people of all ages living with spinal cord injury. The book includes expanded ideas and resources for socializing, travel, sports and recreation. The second edition of Spinal Cord Injury was made possible through a Quality of Life Grant from the Christopher and Dana Reeve Foundation. About the Authors: Sara Palmer, Ph.D., is a psychologist and an assistant professor in the Department of Physical Medicine and Rehabilitation, the Johns Hopkins University School of Medicine. Kay Harris Kriegsman, Ph.D., is a psychologist in private practice in Bethesda, Maryland, author of Taking Charge: Teenagers Talk about Life and Physical Disabilities, and a consultant on disability issues. Jeffrey B. Palmer, M.D., is a professor in and director of the Department of Physical Medicine and Rehabilitation, the Johns Hopkins University School of Medicine. Amazon.com Exclusive: Read an Interview with the Authors 1. How are families affected when a parent or child has a new spinal cord injury? When one member of a family has a spinal cord injury, it has an impact on the life of the whole family. When a parent is injured it means that the uninjured parent, besides dealing with his or her emotional reactions, is loaded with many more responsibilities, especially during the initial hospitalization, and then during rehabilitation. So practically, the family may need to trade roles for awhile or manage basic needs differently, such as, meal preparation or house cleaning. If a child or adolescent is injured, parents may feel overwhelmed but still need to reassure and attend to their other children. Families who can share the trauma story, discuss its effects on the family, reveal their feelings, and talk about what the future may hold, seem to become even stronger, and more cohesive. 2. I know a family where a teenager with a spinal cord injury is treated like the prince of the family. He doesn't have to do household chores like the other kids. Do you think that's fair? Sometimes families, out of a sense of guilt or sadness, put the person with the spinal cord injury on a pedestal. Family members may feel that they cannot ask for their needs to be met when their "poor" sibling or child has had to suffer. But all members of the family deserve their time in the sunlight, and it's important to ensure that everyone's needs are addressed. Also, it's not helpful for the person with spinal cord injury to avoid chores or other family responsibilities. It's better physically and psychologically to continue activities and responsibilities the teenager had before injury, to whatever extent possible. Some families have been known to assign the task of "keeping the family happy" to the teenager. This is an impossible task, as every individual is responsible for his or her own feelings. 3. What did you learn about how people get on with their lives after spinal cord injury? How do they manage to live independently? We found that each person had his or her own puzzle to put together. Sometimes it took replacing or eliminating a piece to make life work in a satisfying, rewarding way. The various pieces included accessible housing, transportation, recreation, socialization, travel, and all the other elements they wanted in their lives. Some found this a difficult process with lots of trial and error. However, once they knew how to get what they needed, they went about their lives in normal ways--working, raising kids, going to the movies, maybe playing wheelchair basketball or tennis, flying out to see the Grand Canyon. Aside from their physical and sometimes medical needs, our interviewees' lives and aspirations were almost indistinguishable from their neighbors'. 4. Can a person with a spinal cord injury engage in sex and have children? Yes! Interest in sex and romance continues after injury. A satisfying sex life is possible, but may require some modifications. Physical sensations during sex might be different, and you may need to try different positions due to changes in strength or mobility. A loving, accepting relationship and the ability to communicate and experiment with your partner are the most important ingredients for a good sex life. Men with spinal cord injury sometimes have reduced fertility, but there are medical procedures that can enable men to father biological children. Women remain fertile after spinal cord injury but may need special care during pregnancy and delivery due to increased risk of various medical problems. 5. I've heard a lot about wheelchair basketball. Are there other sports and recreation for people after spinal cord injury? There are many opportunities to participate in sports and recreation after a spinal cord injury. Some include wheelchair tennis, racing, rugby ("murderball"), dancing, skiing, horseback riding, weightlifting, and sailing. Traveling, camping, fishing, and hunting are also possible. The way in which you participate in these activities will vary depending on the extent of your injury. But even people with severe spinal cord injuries can participate in many recreational activities with assistance. There are organizations that provide sport and recreation activities specifically for people with disabilities, and these include accessible facilities, adaptive equipment, and assistance as necessary. 6. There are a lot of news stories about research to help repair the spinal cord. What are the most exciting current developments? Many scientists are working on ways to regrow and reconnect nerve cells in the spinal cord, including stem cell transplants, use of nerve growth promoters, and even intense physical exercise regimens which may help "reprogram" activities such as walking. Some are researching medications which can decrease the nerve damage that occurs immediately after injury. There are exciting advances in the use of functional electrical stimulation (FES) to improve health and fitness and prevent medical complications in people with spinal cord injury. Finally, research on assistive technology, such as improved wheelchairs, braces, and computer interfaces, has the potential to improve quality of life for people with spinal cord injury. Author photos courtesy of James VanRensselaer and Will Kirk, Homewood Photographic Services |
CUSTOMER REVIEWS (Average Customer Rating: 5.0 based on 1 review)
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Finally, a real life approach! by HC Roland (Maud, tx USA)  5 Stars
November 27, 2001
Since my SCI in May of 1999 we have accumulated a pile of books dealing with various aspects of SCI. At 1/10th the price, this book is many times better than any of the others. Their down to earth approach leads you from the point of injury until the day you make the transition from patient to the new you. Outstanding!
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SIMILAR PRODUCTS |
| Spinal Cord Injury and the Family: A New Guide (Harvard University Press Family Health Guides)
by Michelle J. Alpert M.D. (Author), Saul Wisnia (Author), Cindy and Ted Purcell (Foreword)
Spinal cord injury, or SCI, is frequently sudden and unexpected—through accident, disease, or violence, patients temporarily lose control of their bodies and, it seems, their lives. With rehabilitation, they can learn to navigate their world once more, retraining muscles and mind to compensate for paralyzed limbs and diminished strength. But as Dr. Michelle Alpert shows here, there is far more to recapturing full, independent lives than regaining movement. Central to long-term success is...
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| Spinal Cord Injury: A Guide for Patients and Families (American Academy of Neurology)
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This well-written, reliable overview of traumatic spinal cord injury and its treatment is essential reading for all patients, family members, and caregivers who want a better understanding of the condition. In simple, everyday English, it explains the anatomy of the spine, the results of injury, and treatment and management issues encountered during rehabilitation. A glossary of commonly used terms and website resources offer tools for further study, while the latest scientific research helps...
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| Alternative Medicine and Spinal Cord Injury
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This book opens a broad array of holistic options beyond traditional health care. Alternative therapies for spinal cord injury can not only promote healing, but can actually help restore function. From acupuncture to laser-based therapies, herbal medicine, homeopathy, craniosacral therapy, magnetic healing, and more, the book empowers readers. * clear, reliable information on alternative choices to traditional health care * tailored information to meet the specific needs of...
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| From There to Here: Stories of Adjustment to Spinal Cord Injury
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Forty-five people. Forty-five diverse yet personal life stories. All of them are connected by a powerful, shared life experience - spinal cord injury. From There To Here: Stories of Adjustment To Spinal Cord Injury is certainly about hope -- but not by way of mere inspiration. These essays are the stuff of whole human lives, and illustrate the real and complex process of how people respond to sudden and overwhelming change. They start from trauma and confusion, their vision of the future...
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| The Spinal Cord Injury Handbook: For Patients and Their Families
by Karla Dougherty (Author)
Education is the lifeline that can help spinal cord injured patients return to productive, healthful lives—or begin life anew. Inside the Spinal Cord Injury Handbook, patients, family members, healthcare providers and attorneys learn the six major arenas that make up optimum health and rehabilitation success. These include mobility, skin care, sexuality and myths that pervade society.
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