Product Description
The brand new edition of this unique book describes the difficulties and challenges of girls and women with Rett Syndrome, and proposes solutions that can help them in everyday life. Written from an educational perspective, and based on extensive practical, real-life experience, it also takes into consideration living conditions as a whole to provide practical and effective help for all those involved in the care of those with Rett Syndrome. Rett Syndrome is a severe neurological disorder with no cure affecting 1 out of every 10,000-15,000 female births worldwide. It is now known to result from a chromosomal defect that leads to problems such as mental retardation, serious motor handicaps, epileptic seizures, and difficulties with communication. This syndrome is found only in girls, and usually becomes noticeable during their second year of life. In this new edition, the chapters on intelligence and understanding, learning and communication have been elucidated and deepened. There are also some new sections on digital pictures, computers, and sensory environments. "Understanding Rett Syndrome" is primarily intended for people close to those with Rett syndrome, including teachers, therapists and parents, but should be valuable to anyone involved with children with mental and functional disorders.

CUSTOMER REVIEWS (Average Customer Rating: 5.0 based on 2 reviews)

Must Read Understanding Your Daughter by Kristine Dunahay

5 Stars
April 30, 2008
If your daughter or grand-daughter has this dehabilitating syndrome, I strongly recommend you read this book. I am a grandmother whos grand-daughter has Rett Syndrome. Not knowing the unknown will hamper, push you away, make you wonder what's she's thinking and what for you to do? This book will give you so much advise, and answer the unknowns, and give you more insentives to your knowings. This book will give answers that doctors cannot even tell you. (They most likely have not walked in your footsteps.) How the family will cope, together, with your daughter. This book is a must for any and all families dealing with a female with Rett Syndrome. I cannot stress it enough. Anyone close to her, should take the time to read this knowledgeable, factual and inspiring book. I gave this book to the mother, and told her that she MUST read it. I promise you, that you'll see light at the end of a darken pit. This is why I gave this book 5 stars.

The title says it all by Laura Pattillo (Fairfax, CA United States)

5 Stars
January 21, 2002
We have an 11 year old daughter with Rett Syndrome named Meredith. We only recently heard about this wonderful book. For so many years we wondered what was going through Meredith's head - this book answered that question and many more. It was life changing. It is a MUST READ for parents, teachers and all other professionals that come into contact and care for our special children.

SIMILAR PRODUCTS

	Pathways to Learning in Rett Syndrome by Lewis (Author) Offering accessible advice on the special educational needs of girls with Rett syndrome, this volume aims to assist teachers in developing a working knowledge of the syndrome and suggests particular strategies in planning a curriculum which may help overcome the specific difficulties within the diagnosis. For parents, the book provides a picture of the special school system in this country and the educational implications for their daughters. It should also be of interest to those working with...
	Your Daughter Has Been Diagnosed With Rett Syndrome by Kim Isaac Greenblatt (Author) This book is for parents who just received a diagnosis of Rett Syndrome, their relatives, concerned friends and interested medical professionals. The book explains first hand reactions to the initial diagnosis as well as some coping mechanisms and suggestions for life strategies. Part of all sales go to Rett Syndrome research. Kim Isaac Greenblatt currently lives in West Hills, California.
	More Than a Mom: Living a Full And Balanced Life When Your Child Has Special Needs (Mom's Choice Awards Recipient) by Heather Fawcett (Author), Amy Baskin (Author) (2007 Independent Publisher Award, Bronze Medalist in Women's Issues category; 2006 Mom's Choice Awards, Finalist: Adult Books/Non-Fiction; 2006 Best Books Book Award, Parenting/Family Finalist) MORE THAN A MOM explores how women can lead rich, fulfilling personal lives while parenting a child with special needs. The authors' skillful blend of research, personal experiences, and feedback from over 500 mothers across North America results in a book that is jam-packed with practical...
	Treating Explosive Kids: The Collaborative Problem-Solving Approach by Ross W. Greene PhD (Author), J. Stuart Ablon Phd (Author) The first comprehensive presentation for clinicians of the groundbreaking approach popularized in Ross Greene's acclaimed parenting guide, The Explosive Child, this book provides a detailed framework for effective, individualized intervention with highly oppositional children and their families. Many vivid examples and Q&A sections show how to identify the specific cognitive factors that contribute to explosive and noncompliant behavior, remediate these factors, and teach children and their...
	Keeping Katherine: A Mother's Journey to Acceptance by Susan Zimmermann (Author) Katherine was a beautiful, perfect baby for the first year of her life. Then, without warning, she changed forever. She started crossing her eyes. She cried at night for hours at a time and could not be soothed. She stopped saying words, stopped crawling, and began what would become a lifelong habit of wringing her hands. Hospital visits and consultations with doctors offered no answers to the mystery. Soon Katherine slipped away to a place her mother and father could never reach. In...