EDITORIAL REVIEWS
Product Description The Purpose of this publication is to circulate the most up to date information on Rett Syndrome. In words you can understand from those who understand
CUSTOMER REVIEWS (Average Customer Rating: 5.0 based on 3 reviews)
A MUST OWN book by Clyde G. Bryant (Ogallala Nebraska) 5 Stars March 06, 2008 This is the most comprehensive book I have I have in my arsenal! IT is a must own for parents of a child with any form of developmental delay, neurological issues.
Kathy Hunter is more than just the author... by David P. Krivoshik (Rural Hunterdon County, NJ, USA) 5 Stars March 28, 2007 Kathy Hunter is not only the author but founded the International Rett Syndrome Association (IRSA) in 1984 with friends and families with individuals with Rett Syndrome. IRSA's first office was Kathy's kitchen table. I am privileged to have met Kathy & her daughter Stacie who will be 33 in May 2007. Decades ago Stacie was the first girl diagnosed with Rett Syndrome in the US. Kathy's passion, motivation & drive created an organization which is one of the only real resources for families with a daughter who has Rett Syndrome. They have new copies of this first edition book. A test to determine Rett Syndrome was only developed in December 1999. Rett Syndrome affects only 1 in every 10,000 to 15,000 girls. Our daughter has Rett Syndrome. When she was first diagnosed we were shocked and terrified, which over time turned to anger and frustration. Now we believe we are proactive and outspoken, although our effects pale to those of Kathy Hunter. Her book & and her organization IRSA are a must for anyone with a daughter with Rett Syndrome. The first edition, although outdated by recent developments, is well worth reading even if you pre-ordered the second edition from IRSA. Having seen and read parts of the not yet published second edition, I can say it is even better, greatly expanded & updated.
Kathy Hunter is not just the author... by David P. Krivoshik (Rural Hunterdon County, NJ, USA) 5 Stars January 05, 2007 Kathy Hunter is not only the author but founded the International Rett Syndrome Association (IRSA) in 1984 with friends and families with individuals with Rett Syndrome. IRSA's first office was Kathy's kitchen table. I am privileged to have met Kathy & her daughter Stacie who will be 33 in May 2007. Kathy's passion, motivation & drive created an organization which is one of the only real resources for families with a daughter who has Rett Syndrome. They have copies of the first edition book. A test to determine Rett Syndrome was only developed in December 1999. Rett Syndrome affects only 1 in every 10,000 to 15,000 girls. Our daughter has Rett Syndrome. When she was first diagnosed we were shocked and terrified, which over time turned to anger and frustration. Now we believe we are proactive and outspoken, although our effects pale to those of Kathy Hunter. Her book & and her organization IRSA are a must for anyone with a daughter with Rett Syndrome. The first edition, although outdated by recent developments, is well worth reading even if you pre-order the second edition from IRSA. Having seen and read parts of the not yet published second edition, I can say it is even better, greatly expanded & updated.

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The Rett Syndrome handbook: In words you can understand from those who understand | Paperback

EDITORIAL REVIEWS