X Stories: The Personal Side of Fragile X Syndrome | Paperbackby Charles W. Luckmann (Editor), Paul S. Piper (Editor)
|List Price: ||$19.95 |
|Available: ||Usually ships in 24 hours|
|Publisher: ||Flying Trout Press|
|Edition: ||1stst Edition|
|Page Count: ||299 Pages|
|Publication Date: ||July 25, 2006|
|Sales Rank: ||2292392nd|
In X Stories: The Personal Side of Fragile X Syndrome, people who have been touched by fragile X tell in their own words how the experience has touched and transformed their lives.
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Elizabeth Griffin's son Zack has fragile X syndrome-the most common known cause of inherited mental impairment-and is among the 20 percent of people with fragile X who have autism. Whether you are a parent of a child with special needs or you struggle with unresolved grief, chronic stress, or depression, "Fragile X, Fragile Hope" shows without a doubt that you can survive, and more than survive, you can find your way back to a joy-filled life.
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When her son, J.P., was first diagnosed with fragile X syndrome, the most common inherited form of mental retardation, Clare Dunsford discovered that she and three of her four siblings carried the fragile X premutation and had therefore passed on the full mutation to J.P. and several of his cousins. An English professor by training, Dunsford draws on poetry to explore her new identity as a "mutant" and reflect on her life with J.P., a colorful young man with great verbal dexterity and a lovable...
|Becoming Mrs. Rogers|
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Becoming Mrs. Rogers is the true and heart-felt story of one couple's journey into acceptance following a devastating genetic diagnosis for both of their sons. Their story, its highs and lows entwined with its wisdom and compassion, has become a beacon of hope for thousands of families struggling with fragile X and other autism spectrum disorders. Fragile X is a common and inherited cause of learning difficulties, affecting a child's entire world, including social and behavioral problems as...
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