X Stories: The Personal Side of Fragile X Syndrome | Paperbackby Charles W. Luckmann (Editor), Paul S. Piper (Editor)
|List Price: ||$19.95 |
|Available: ||Usually ships in 24 hours|
|Publisher: ||Flying Trout Press|
|Edition: ||1stst Edition|
|Page Count: ||299 Pages|
|Publication Date: ||July 25, 2006|
|Sales Rank: ||316199th|
In X Stories: The Personal Side of Fragile X Syndrome, people who have been touched by fragile X tell in their own words how the experience has touched and transformed their lives.
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Elizabeth Griffin's son Zack has fragile X syndrome-the most common known cause of inherited mental impairment-and is among the 20 percent of people with fragile X who have autism. Whether you are a parent of a child with special needs or you struggle with unresolved grief, chronic stress, or depression, "Fragile X, Fragile Hope" shows without a doubt that you can survive, and more than survive, you can find your way back to a joy-filled life.
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When her son, J.P., was first diagnosed with fragile X syndrome, the most common inherited form of mental retardation, Clare Dunsford discovered that she and three of her four siblings carried the fragile X premutation and had therefore passed on the full mutation to J.P. and several of his cousins. An English professor by training, Dunsford draws on poetry to explore her new identity as a "mutant" and reflect on her life with J.P., a colorful young man with great verbal dexterity and a lovable...
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|Children with Fragile X Syndrome: A Parents' Guide|
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Fragile X syndrome is believed to be the most common genetic cause of mental retardation, even more common than Down syndrome. It can result in a wide range of developmental delays, learning disabilities, and physical characteristics-which all tend to be more pronounced in boys than in girls. At last, there is a comprehensive book on fragile X syndrome for parents. The first and only book of its kind, Children with Fragile X Syndrome provides a complete, sensitive introduction to fragile X...
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