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| View Larger Image | The Gift of Experience: Conversations About Hemophilia | Paperbackby Laura Gray (Author), Christine Chamberlain (Author)
| List Price: | $12.50 | | | Available: | Usually ships in 24 hours |
| | Binding: | Paperback | | Publisher: | Camden Writers | | Page Count: | 334 Pages | | Publication Date: | April 16, 2008 | | Sales Rank: | 2,235,017nd |
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EDITORIAL REVIEWS |
Product Description
"The Gift of Experience" captures the lives and perspectives of twenty-one men, born with hemophilia, and their caregivers, in ways that other resources have failed to do. In vital and personal stories, their accounts capture the impact of the dramatic advances in the treatment of the disease as well as the challenges of chronic pain and joint damage. The conversations also include discussions of the HIV and hepatitis C infections resulting from the tainted blood supply between the late 1960s and the mid-1980s. Laura Gray and Christine Chamberlain have done a tremendous job weaving these oral histories into a narrative that allows their subjects to speak for themselves. "The Gift of Experience" is a 'must read' for anyone interested in the illness and disability experiences of people with chronic diseases, as well as those with bleeding disorders. "The Gift of Experience" is moving and inspiring, a hopeful account of the human experience. |
CUSTOMER REVIEWS (Average Customer Rating: 5.0 based on 2 reviews)
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unvarnished and wonderful by mama and the Y-chromosomes  5 Stars
April 14, 2009
This oral history is moving and honest, letting men with hemophilia describe what it is like to live with their disorder. The men interviewed come from the first generation to be able to receive treatment for their bleeding, by infusing the missing protein into their blood. An infusion of clotting protein could stop the bleeding, the swelling and pain of a bleed, and offered a chance at a life outside of a bed, ice packs and pain. As men with hemophilia rejoiced, they were paying a silent, unexpected price: the clotting protein was drawn from donated blood, and often infected with HIV/AIDS, and hepatitis C.
This is history from those who are living it, told in their own words. It is an extraordinary "Gift," indeed.
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studies in resilience by Scuppers, MD 5 Stars
November 20, 2008
inspiring - applies to many of life's challenges, not just hemophilia - excellent teaching tool for health care providers, patients, families
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