| View Larger Image | Living with Epidermolysis Bullosa | Paperbackby Silvia C. (Author)
| List Price: | $19.95 | | | Available: | Usually ships in 24 hours |
| | Binding: | Paperback | | Publisher: | Lulu.com | | Page Count: | 168 Pages | | Publication Date: | August 27, 2007 | | Sales Rank: | 1,871,348st |
|
EDITORIAL REVIEWS |
Product Description
Living with Epidermolysis Bullosa has first-hand accounts written by parents and patients who are living or have lived with EB, and was compiled to help people in general understand how it is like to truly live with every form of Epidermolysis Bullosa; from the milder Simplex variants, who are nonetheless not simple to live with, to the more lethal, namely Junctional, whose patients usually succumb to before their first birthday. The stories you will read are from proud parents, or patients and their struggles and how they are coping. Some stories are sad, some are encouraging, and everything in between. |
SIMILAR PRODUCTS |
| Epidermolysis Bullosa: Clinical, Epidemiologic, and Laboratory Advances and the Findings of the National Epidermolysis Bullosa Registry
by Dr. Jo-David Fine MD MPH (Editor), Dr. Eugene A. Bauer MD (Editor), Dr. Joseph McGuire MD (Editor), Dr. Alan Moshell MD (Editor)
Univ. of North Carolina, Chapel Hill. Text presenting the findings of the National Epidermolysis Bullosa Registry collected on or before December 1, 1995. Also includes a series of reviews summarizing clinical and basic issues related to inherited epidermolysis bullosa. For researchers and clinicians.
| 
| Special Mommy Chronicles
by Silvia C. (Author)
The Special Mommy Chronicles is a column written by Silvia C., the mom of a Special Need child (son suffers from the Recessive Dystrophic form of Epidermolysis Bullosa) which offers insights, stories and struggles that go along in raising special kids.
|
|
|
