Product Description
Here is the state-of-the-art on recognizing, managing and living with neurofibromatosis (NF) for patients, families, and health care professionals. From new genetic and diagnostic advances, to associated cardiovascular and endocrine abnormalities, to the significant psychosocial impact of NF, the book is packed with clear, practical guidance for understanding and living with this disability. Special features - - A complete diagnostic guide to help you recognize NF-related symptoms--with a timeline for when they might appear - New treatment options for NF, including pain control - Coverage of the newly discovered form of NF, schwannomatosis - Personal perspectives from NF patients and their families - Glossary that defines medical terminology With the great diagnostic and treatment advances achieved in the last decade, and research proceeding rapidly, the future for patients with NF has never been brighter. For all individuals living with the challenges of this disability, the book brings you to the forefront of medical knowledge. Make sure it is within close reach for fast and easy reference.

CUSTOMER REVIEWS (Average Customer Rating: 5.0 based on 3 reviews)

must read by Mary E. Barrett (Clarks Summit PA)

5 Stars
July 28, 2008
My three year old son was recently diagnosed with Neurofibromatosis type 1 and I have been disappointed by the amount of medical literature avaible on the subject. This book was one of the most helpful I have come across in terms of NF. I have found that with NF, the patient needs to understand the disease enough to teach some medical professionals. Unless we are seeing a specalist, many doctors are unfamilliar with the disorder. This book is a must read for the physician and the patient.

This NF book is a must buy ! by runnerpaul (Shelby Twp. MI)

5 Stars
January 09, 2007
I bought this book after I found some rave reviews on the internet. It's costly but worth every penny as it's full of so much relevant information! Thank you Bruce Korf for writing this book!

NEUROFIBROMATOSIS-a handbook for patients,families,and health care professionals. by JERRY WILLMAN (OKLAHOMA/TEXAS,U.S.A.)

5 Stars
July 09, 2006
This is a must read for anyone with NF or anyone who has a loved one with NF. It has helped me with some symptons I have been having and I know have had the proper tests, now awaiting results. It is a MUST HAVE for ALL HEALTH CARE PROFESSIONALS. I realized while reading the personal prospectives form individuals with NF that I took part in the study but was not used in the book. I have my sister and niece to THANK for the book. IT IS A MUST HAVE AND READ BOOK.

SIMILAR PRODUCTS

	Neurofibromatosis - A Medical Dictionary, Bibliography, and Annotated Research Guide to Internet References by ICON Health Publications (Author) In March 2001, the National Institutes of Health issued the following warning: "The number of Web sites offering health-related resources grows every day. Many sites provide valuable information, while others may have information that is unreliable or misleading." Furthermore, because of the rapid increase in Internet-based information, many hours can be wasted searching, selecting, and printing.This book was created for medical professionals, students, and members of the general public who...
	Living with Genetic Disorder: The Impact of Neurofibromatosis 1 by Joan Ablon (Author) A chronicle of the life experiences of adults with neurofibromatosis 1, a neurological genetic condition for many years misdiagnosed as "The Elephant Man's Disease." Affected persons deal with an unpredictable and potentially stigmatizing disorder, the symptoms of which range from physical disfigurement to severe learning disorders. Ablon offers suggestions for families, support systems, and health care providers to enhance coping skills and self image of the affected persons.
	Neurofibromatosis Type I in Childhood by Kathryn North (Author) A great deal is now known about neurofibromatosis type 1, particularly as a result of the identification of its causative gene by positional cloning. However, effective treatments for its resulting cosmetic disfigurement, impaired cognitive performance and even life-threatening malignancy remain elusive. As Dr. Korf remarks in his Foreword: "this book's cogent and thorough description of neurofibromatosis in children will take its place alongside other major clinical studies of the disorder....
	Neurofibromatosis: Phenotype, Natural History, and Pathogenesis (Johns Hopkins Series in Contemporary Medicine and Public Health) by Dr. J. M. Friedman MD PhD (Editor), Dr. David H. Gutmann MD-PhD (Editor), Dr. Mia MacCollin MD (Editor), Dr. Vincent M. Riccardi MD (Editor) Univ. of British Columbia, Canada. Combines the Neurofibromatosis Institute Database with the International NF Database and the National NF Foundation. This edition sees an increased emphasis on NF2, in clinical and molecular terms. Previous edition: c1992. Includes evaluation and management, cognitive function and academic performance, and more.