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| View Larger Image | With Every Breath: stories by and about people living with cystic fibrosis | Perfect Paperbackby Katherine Russell and Margot Russell (Author), Katherine Russell and Margot Russell (Editor)
| List Price: | $5.50 | | | Available: | Usually ships in 24 hours |
| | Binding: | Perfect Paperback | | Publisher: | self | | Edition: | 1st Edition | | Page Count: | 105 Pages | | Publication Date: | October 25, 2006 | | Sales Rank: | 365,510th |
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EDITORIAL REVIEWS |
Product Description
Over 30,000 people in the US have cystic fibrosis, a life-threatening genetic disease that affects the lungs and digestive system. Physically, fighting it is a very perilous struggle. Emotionally, coping can oftentimes be even harder. With Every Breath consists of stories by and about people living with cystic fibrosis. Created to motivate, inspire, and generate positivity for those living with cystic fibrosis, this book is something you can open time and time again. Designed for all ages, this collection of diverse stories offers unique perspectives from patients, a CF doctor and nurse, and family members of those living with the illness. Patients aren't the only ones who will want to read With Every Breath as family members, friends, and doctors can all find inspiration when they open it. The stories range from overcoming challenges, understanding the disease, lung transplants, diagnosis stories, and more. The book is filled with fun artwork, uplifting quotes, and photography. Celine Dion contributed the Foreword, and there are chapters by people of all ages and walks of life. This book is sponsored by the Boomer Esiason Foundation, and all proceeds will go to cystic fibrosis. |
CUSTOMER REVIEWS (Average Customer Rating: 5.0 based on 1 review)
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With Every Breath: Stories by/abt. people living with Cystic Fibrosis by DawnLowenstein  5 Stars
May 16, 2009
I am glad that I purchased this book! I find it very interesting to read about genetic disorders! It has taught me how challenging a genetic disorder is for ANY family who happens to have a child with CF! Hopefully this book will be a help to families who have a child/children with CF! I've purchased a # of books thru Amazon dealing with the subject of Cystic Fibrosis! The stories presented by the families are really touching and they strive to give their child a life to savor as long as possible! Dawn E. Lowenstein
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SIMILAR PRODUCTS |
| The Power of Two: A Twin Triumph over Cystic Fibrosis
by Isabel Stenzel Byrnes; Anabel Stenzel (Author)
The tragedy of cystic fibrosis has been touchingly recounted before, but this is the first book to portray the symbiotic relationship between twins who share this life-threatening disease through adulthood. Isabel Stenzel Byrnes and Anabel Stenzel tell of their struggle to pursue normal lives while grappling with the realization that they might die young. Their story reflects the physical and emotional challenges of a particularly aggressive form of CF and tells how the twins bicultural...
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| Sick Girl Speaks!: Lessons and Ponderings Along the Road to Acceptance
by Tiffany Christensen (Author)
Surprise! I’m still not dead! Okay, sure, I was born with an incurable genetic disease and, yes, I have faced terminal illness two times but … here I am! And I’m ready to speak! I’ve now been navigating the Western medical maze for over three decades. Along the way, I’ve had to learn some pretty painful lessons about how to advocate for myself and what happens if I don’t. I also know how scary and disorienting illness can be—I have a lot to say about finding peace and...
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| Little Brave Ones: For Children Who Battle Cystic Fibrosis
by Carrie Lux (Author)
See a day in the life of a preschooler with CF.
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| Cystic Fibrosis: A Guide for Patient and Family
by David M Orenstein (Editor)
Univ. of Pittsburgh, PA. Text is designed specifically for patients with cystic fibrosis and their families. Explains the disease process, outlines the fundamentals of diagnosing and screening, and addresses the challenges of treatment for those living with CF. Includes new material on carrier testing, infection control, and more. Previous edition: c1997. Softcover.
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| Cystic Fibrosis: Everything You Need To Know (Your Personal Health)
by Wayne Kepron MD FRCPC (Author)
Cystic fibrosis afflicts approximately 30,000 Americans. The average age of survival has been steadily increasing, but not quickly enough: a child born with cystic fibrosis today can only expect to live 35 to 40 years. In this valuable new addition to the Your Personal Health series, Dr. Wayne Kepron offers a comprehensive look at the disease that afflicts so many young people. Topics include: - Symptoms of cystic fibrosis - Making a diagnosis - Complications of the disease -...
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