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| View Larger Image | Faces of Huntington's | Paperbackby Carmen Leal-Pock (Author)
| 9 Used starting at: | $1.49 |
| | 3 Collectible starting at: | $14.14 |
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| | Binding: | Paperback | | Publisher: | Living Hope, Inc | | Page Count: | 368 Pages | | Publication Date: | May 01, 1998 | | Sales Rank: | 1,098,672st |
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EDITORIAL REVIEWS |
Product Description
Faces of Huntington's is an incredible collection of stories, essays, poems, and quotes of those who are in some way connected to Huntington's Disease. The book focuses on over sixty people who have HD, are at risk, caregivers, other family members, adn friends. It is a beacon of light in what is often a dark world. 30,000 Americans have this terminal neurological disorder. An additional 150,000 are at-risk. Somehow, despite the horror of Huntington's Disease, there is loving support, a positive attitude, and unending hope. There are stories that make you rejoice at the unswerving faith and those that make you cry at the senseless loss. Faces of Huntington's gives readers a glance at the faces of heroes. It is guaranteed to bring tears of joy, hope, love and compassion to your eyes. |
CUSTOMER REVIEWS (Average Customer Rating: 5.0 based on 37 reviews)
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Deeper Appreciation by Lee Warren (Omaha, NE USA)  5 Stars
May 14, 2003
Leal has done a fantastic job putting faces with a disease that most people know nothing about. She puts the reader right in the midst of the agonizing decisions that people with Huntington's disease have to make. Since the disease is hereditary, should those with a history of Huntington's in their family get tested for the gene that causes the disease? Should those with the disease have children knowing that they could pass the disease along to the next generation? When, if ever, is it time for the person with the disease to move to a nursing home? I didn't know anything about Huntington's before I read Leal's book. After reading it, I have a deep appreciation for the struggles that families face after a positive diagnosis. If you are looking for a book about Huntington's that doesn't gloss over the hard parts of life and yet at the same time shows you what faces of courage, hope and faith can look like during trials, then this book is for you.
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If You're Interested in Huntington's, Read This Book. by Jim Pollard (Lowell, MA USA) 5 Stars
March 21, 2003
As a healthcare professional I've worked with a few hundred families touched by HD over the last 17 years. Among those families, this book "Faces..." is known as a tool for hope, support and inspiration. I have purchased many copies of this book over the last few years and given it as a gift to families.The positive reviews here clearly reflect the overwhelming praise that this book reliably receives from folks touched by HD. I respect the views of the folks who've posted those negative comments. HD is the worst damn disease that can touch a family and it manifests itself in unlimited ways. And everyone handles it in their own unique way. However, it would be sad if a family looking for a source of hope like this one turned away from it because of those comments. The overwhelming percentage of folks who've read this book talk about it as an important source of hope and support for themselves. Read it and see for yourself!
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HD by john a (New Mexico)  1 Stars
March 19, 2003
I am in the early stages of HD and I can understand the negative review. My wife has promised me that if my mind becomes that of a four year old, she will not dress me as a four year old and take me to an amusement park and allow strangers to photograph me. I know at that time I might not notice the loss of dignity, but I care now. If we do go, I want to go as an adult with HD, not wearing a "Goofy" shirt. The author seem insensitive to me.
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One of the best books I've ever read on the subject 5 Stars
March 09, 2003
I just re-read Faces of Huntington's and decided it was time to write a review. I am so thankful this book was written and published. Again I was amazed at the author's sensitivity and her ability to pack so much into one book. For far too long there was nothing written about this disease except what was in a medical book. There was certainly nothing about the people themselves. I liked how so many people were included and not just the author. This gave us a much more complete and accurate picture of the disease from all sides.I was amazed to read the negative review. I understand that not everyone sees the glass half full versus the 99% empty the person who reviewed the book sees. But the review seemed more an attack on the author's character rather than on her work. I feel really sad that someone is so bitter they can't see anything but ugliness no matter where they look. Makes me wonder did they really read the book since in the book I read had stories about suicide, abuse, juvenile Huntington's, death and other real effects of this devastating disease. When I read the review I wondered why this person doesn't write their own book filled with their 42 years of experience.Faces of Huntington's is one of those books I know I will go back to many times over the years and will recommend to others.
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Well written and full of information 5 Stars
March 09, 2003
I have purchased the book Faces of Huntington's,read it,and recommended it to friends. This was a book that needed to be written. For the first time I was able to read stories of other people dealing with this disease,like I am.It is a book that is very easy to read. Not all stories are sad , and that was encouraging.You will find ways to handle your problems by reading how others have.I found my self re-reading the book many times , its comforting.
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SIMILAR PRODUCTS |
| Learning to Live With Huntington's Disease: One Family's Story
by Sandy Sulaiman (Author)
Huntington's Disease (HD) is a hereditary illness passed on via a defective gene. There is a fifty per cent chance of inheriting it from a parent and there is yet no cure. "Learning to Live with Huntington's Disease" is one family's poignant story of coping with the symptoms, the diagnosis and the effects of HD. This book presents the struggles and strengths of the whole family when one member loses their future to a terminal illness. Told by the sufferer and other significant family members,...
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| Portraits of Huntington's
by Carmen Leal (Author)
Portraits of Huntington's is a joyful collection of profiles, essays, and quotes for and about those with Huntington's Disease. Portraits of Huntington'sfeatures award winning artist Ruth Hargrave's incredible portraits of eight individuals or family groups who are all in some way touched by this genetic disease. Joy is a choice. Happiness is based on a set of circumstances, and Portraits of Huntington's asks us to choose joy. As with Faces of Huntington's,in each chapter is thematic,...
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| Mapping Fate: A Memoir of Family, Risk, and Genetic Research
by Alice Wexler (Author)
In Mapping Fate, Alice Wexler tells the story of a family at risk for a hereditary, incurable, fatal disorder: Huntington's disease, once called Huntington's chorea. That her mother died of the disease, that her own chance of inheriting it was fifty-fifty, that her sister and father directed much of the extraordinary biomedical research to find the gene and a cure, make Wexler's story both astonishingly intimate and scientifically compelling. Alice Wexler's graceful and...
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| The Woman Who Walked into the Sea: Huntington's and the Making of a Genetic Disease
by Alice Wexler (Author)
When Phebe Hedges, a woman in East Hampton, New York, walked into the sea in 1806, she made visible the historical experience of a family affected by the dreaded disorder of movement, mind, and mood her neighbors called St.Vitus's dance. Doctors later spoke of Huntington’s chorea, and today it is known as Huntington's disease. This book is the first history of Huntington’s in America.
| Devil's Dance
by Richard R. Karlen (Author)
"If I chance to talk a little wild, forgive me:/I had it from my father."
William Shakespeare, "Henry VIII" Harry Stone's life is falling apart. At age forty-four, an English professor, he begins to dress in black and white and ride motorcycles in the night. After getting one of his students pregnant, he is forced to resign from the University. Unable to tolerate his strange, sometimes cruel behavior, his wife, Sandy, throws him out of the house. His younger brother...
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