Science Current Events | Science News | Brightsurf.com
 

Children with heart defects need early evaluation for related disorders

July 31, 2012

Children born with a congenital heart defect should receive early evaluation, prompt treatment and ongoing follow-up for related developmental disorders affecting brain function, according to a new American Heart Association scientific statement published in Circulation.

Each year in the United States, congenital heart defects - present at birth - affect approximately 36,000 infants, or nine out of every 1,000. Adult survivors now number between 1 and 3 million.

Medical advances help most infants born with a congenital heart defect survive into adulthood. However, survivors with complex heart problems are at a greater risk for developmental issues compared to heart-healthy children, which may stem from the heart defect, an underlying genetic variation, medical treatments or the day-to-day psychological stress of living with an ongoing, serious disease.

"If your child fits the high-risk criteria, go to the physician who coordinates your child's care to obtain evaluations for neurodevelopmental, psychosocial, and behavioral and emotional issues," said Bradley S. Marino, M.D., M.P.P, M.S.C.E., co-chair for the scientific statement's writing group and associate professor of pediatrics at the University of Cincinnati College of Medicine.

"Your child's cardiologist should continue to handle the physical issues related to your child's heart disease, but other caregivers need to join your child's 'medical home' to ensure the best ongoing, comprehensive care," said Marino who is also director of the Heart Institute Research Core and the Heart Institute Neurodevelopmental Clinic at Cincinnati Children's Hospital Medical Center. A medical home is usually the child's primary care provider.

Developmental disorders among children with congenital heart defects may manifest in childhood or adolescence as school difficulties, poor social skills, speech and language problems, attention, behavior and emotional issues and physical limitations. These developmental disorders can be identified and managed through continuous surveillance, appropriate screening, early evaluation, periodic re-evaluation, and continuous, comprehensive treatment coordinated by a central care provider. Treatment may include special education classes, tutoring, psychological, physical, and occupational and speech therapies.

In addition to assessing risk level and referring high-risk patients for further developmental and medical evaluation, other recommendations include:

- Establish a "medical home," usually the primary care provider, to coordinate care between various specialists.

- Each time your child visit's their "medical home," their risk of developmental disorders should be reassessed because risk level may change over time.

- If your child is considered at high-risk, they may be referred for early intervention even before a developmental disorder is formally diagnosed.

- For children with congenital heart disease deemed high-risk, periodic re-evaluation for developmental disorders is recommended throughout infancy and childhood at 12 to 24 months, 3 to 5 years and 11-12 years of age.

- If your child is high-risk, they may benefit from higher-education or vocational counseling when they are a young adult.

The statement identifies, for the first time, conditions that increase the risk for these developmental disorders among survivors, including open heart surgery in infancy, having a congenital heart defect that results in the child being chronically "blue", or a combination of congenital heart disease and one of the following issues: premature birth; developmental delay as a baby; suspected genetic abnormality or syndrome; history of mechanical support to help the heart; heart transplantation; a history of cardiopulmonary resuscitation; prolonged hospitalization during the child's heart care; seizures related to heart surgery; and brain abnormalities noted on brain imaging.

"If we identify developmental problems earlier, we're going to help prevent issues from coming up in school that prevent these children from achieving their fullest potential," Marino said. "In the past, we were happy if they survived. Now, we want them to survive and thrive."

American Heart Association


Related Congenital Heart Defect Current Events and Congenital Heart Defect News Articles


CNIC researchers identify a new signaling mechanism implicated in congenital aortic valve disease
Researchers at the Centro Nacional de Investigaciones Cardiovasculares Carlos III (CNIC) have demonstrated the crucial role of the NOTCH signaling pathway in the development of a fundamental heart structure, the heart valves.

Scientists elucidate genetic underpinnings of congenital heart disease
Congenital heart disease is the most common birth defect and the leading cause of all infant deaths in the United States.

New findings on embryonic heart valves may prevent congenital heart defects in newborns
Cornell biomedical engineers have discovered natural triggers that could reduce the chance of life-threatening, congenital heart defects among newborn infants. Those triggers can override developmental, biological miscues, leading to proper embryonic heart and valve formation.

Device-assisted feeding and poor growth in newborns with CHD may lead to poor neurodevelopment
Newborns with a congenital heart defect (CHD) often need advanced medical care to survive, leaving them vulnerable to cognitive delays. Various factors, like prematurity, length of hospital stay, cardiac arrest, amongst others, contribute to these delays.

Preeclampsia increases risk of heart defects in infants
Pregnant women with preeclampsia have a higher risk of delivering an infant with a congenital heart defect.

Surgeons refine procedure for life-threatening congenital heart defect
Children born with the major congenital heart defect hypoplastic left heart syndrome (HLHS) often must undergo a series of corrective surgeries beginning at birth.

Blood markers could help predict outcome of infant heart surgery
The study, published today in the journal Critical Care Medicine and carried out at Royal Brompton Hospital, followed children undergoing surgery for congenital heart disease, and found that by analysing metabolites in the blood -- molecules created as a result of metabolism -- it was possible to predict a child's clinical outcome.

Exercise for older mouse mothers lowers risk of heart defects in babies
In people, a baby's risk of congenital heart defects is associated with the age of the mother. Risk goes up with increasing age. Newborn mice predisposed to heart defects because of genetic mutations show the same age association.

Congenital heart defects affects long-term developmental outcome
Approximately one percent of all newborns in Switzerland are diagnosed with a congenital heart defect, roughly half of them require open heart surgery.

Environmental toxins linked to heart defects
Children's congenital heart defects may be associated with their mothers' exposure to specific mixtures of environmental toxins during pregnancy, according to research presented at the American Heart Association's Scientific Sessions 2013.
More Congenital Heart Defect Current Events and Congenital Heart Defect News Articles

Illustrated Field Guide to Congenital Heart Disease and Repair - Pocket Sized

Illustrated Field Guide to Congenital Heart Disease and Repair - Pocket Sized
by Allen D. Everett (Author)


An indispensable portable teaching tool - it has changed the way congenital heart disease is taught.

Congenital Heart Defects, Simplified

Congenital Heart Defects, Simplified
by RDCS (AE (Author), PE) (Author), RVT (Author), Ken Heiden (Author), Ken Heiden (Illustrator), Linda Wilson (Illustrator)


Congenital Heart Defects, Simplified is a well-organized, easy-to-read resource for the busy echocardiographer who needs access to information immediately. It is also an excellent guide for medical and nursing students and even parents seeking to understand congenital heart defects. The book includes full descriptions of the 30 most common heart defects, ranging from familiar defects like pulmonary stenosis and aortic coarctation to more uncommon ones, such as hypoplastic left heart syndrome and truncus arteriosus. Each defect is explained in a two-page spread with bullet-point descriptions on the right-hand page and full-color illustrations (that include surgical repairs) on the left. The 90 full-color illustrations will further enhance understanding of this complex subject area....

Zip-Line

Zip-Line
by David Humpherys (Author)


Zip-line is a book for kids that have a scar on their chest from open heart surgery to repair a CHD. Used by families, schools and hospitals, Zip-line whimsically explains the answer to the question "How did that line get there?". The story centers around a little girl and her bunny rabbit explaining to the reader how she got the scar on her chest and how she isn't any different than anyone else. It shows her unrestricted in activities and features age appropriate illustrations - no blood, or anything remotely graphic. It aims to set a model for kids with a CHD to be comfortable with themselves, their heart scar, and the surgery that they were too young to remember. www.ziplinebook.com

Color Atlas and Synopsis of Adult Congenital Heart Disease

Color Atlas and Synopsis of Adult Congenital Heart Disease
by Curt Daniels (Author), Ali Zaidi (Author)


Interpret, diagnose, and treat with this case-based atlas of congenital heart disease Color Atlas and Synopsis of Adult Congenital Heart Disease does more than help you interpret imaging studies of congenital heart disease – it also provides evidence-based guidance on the diagnosis and management of patients undergoing these tests. Presented in a concise, easy-to-read design that is perfect for busy clinicians and intended for family practitioners, internists, pediatricians and general cardiologists, this unique combination text and atlas features more than 275 illustrations, including 140 color photographs, and includes coverage of defects most commonly seen in adult congenital cardiology. Using clinical cases, imaging studies, and pathology specimens, the book provides a succinct...

Congenital Diseases of the Heart: Clinical-Physiological Considerations

Congenital Diseases of the Heart: Clinical-Physiological Considerations
by Abraham Rudolph (Author)


This important revision presents the accumulated knowledge of its highly-regarded author, Dr. Abraham Rudolph, who is internationally recognized as one of the world's leading pioneers in the field of Pediatric Cardiology. Fully revised and updated, the book includes sections considering the changes in pathophysiology with growth into adulthood and the effects of various treatment approaches. The author explains the physiology of normal fetal circulation and the effects of congenital cardiac lesions, with particular reference to the interactions between the lesions and fetal cardiovascular development.

Comprehensive Surgical Management of Congenital Heart Disease, Second Edition

Comprehensive Surgical Management of Congenital Heart Disease, Second Edition
by Richard A Jonas (Author)


Highly Commended, BMA Medical Book Awards 2015 Since the first edition of this book was published in 2004, the management of congenital heart disease has continued to evolve at a rapid pace. Not only have new operations been developed and expanded, such as the intra/extracardiac conduit Fontan and the double root translocation for corrected transposition, but in addition, diagnostic methods―particularly cardiac CT and MRI―have been dramatically transformed. Understanding of the genetic basis of congenital heart disease and the embryology of cardiac development has progressed even more rapidly. What has not changed is that optimal outcomes for children and adults with congenital heart disease can only be achieved by a collaborative team effort. The team includes not only congenital...

Charlie the Courageous

Charlie the Courageous
by Joslynn Jarrett-Skelton (Author), Adam Walker-Parker (Illustrator)


Meet Charlie! A courageous young girl who has had her fair share of battles in this world. After being born blue, Charlie needed a special surgery on her heart. Charlie was given super powers that only she knew, and wore her mighty heart scar on her chest proudly. She with her sisters and friends, teach children to love and embrace each other’s differences. So put on your cape and mask and join Charlie the Courageous on her adventures!

Echocardiography in Pediatric and Congenital Heart Disease: From Fetus to Adult

Echocardiography in Pediatric and Congenital Heart Disease: From Fetus to Adult
by Wyman W. Lai (Author), Luc L. Mertens (Author), Meryl S. Cohen (Author), Tal Geva (Author)


This comprehensive textbook on the echocardiographic assessment of pediatric and congenital heart disease has been updated for a second edition with an emphasis on new technologies. This highly-illustrated full-color reference contains over 1200 figures, and offers over 600 video clips on a companion website.

Fully updated, with new chapters on the assessment of the post-Fontan procedure patient and on pregnancy and heart disease Each lesion chapter includes new section highlighting the key elements of the echocardiogram(s) Written by experts from the leading centers around the world, with numerous new authors Revision emphasizes new technologies and quality of images Comprehensive content contains overview of ultrasound physics, discussion of laboratory set-up, protocol for...

Illustrated Field Guide to Congenital Heart Disease and Repair - Large Format

Illustrated Field Guide to Congenital Heart Disease and Repair - Large Format
by Allen D Everett (Author)


An indispensable portable teaching tool - it has changed the way congenital heart disease is taught.

CHD : Jorja's Heart: A Brave Little Girl's Battle with a Congenital Heart Defect

CHD : Jorja's Heart: A Brave Little Girl's Battle with a Congenital Heart Defect
by Four J's Publishing


Is your child suffering from a Congenital Heart Defect?
You are not alone. This book will help you and your family understand what congenital heart defects are all about, but most importantly, take you on a journey of a brave little girl and her family as she battles her congenital heart defect. 1 in 100 children have a congenital heart defect, yet most children are never diagnosed.

This book does not aim to give medical advice, but to create awareness of congenital heart defects.
Here are some of the things you will read about...
What is a congenital heart defect?The DiagnosisSurgery DayThe RecoveryAnd much, much more!

Download your copy today!

© 2016 BrightSurf.com