The Scleroderma Book has long been considered the leading source of information for patients suffering with this disease. Now comes the Second Edition of this highly respected volume, extensively revised by Maureen Mayes, M.D., the leading authority in this field. Writing specifically for patients and their families, Dr. Mayes draws on her extensive experience treating scleroderma to provide up-to-date, practical information that will help patients manage their symptoms and improve their quality of life. Dr. Mayes begins with an easily accessible description of the basic facts, distinguishing between the many manifestations of the disease, ranging from localized scleroderma (small patches of hardened skin, most common in children, which tend to clear up over time) to systemic scleroderma, which can attack the lungs, the kidneys, and the blood vessels, and can be life threatening. Equally important, she offers sympathetic and reassuring advice on matters that often concern patients, such as the best course of action for those who want children, what to do if the disease affects your sex life, and what you can do to help your doctor treat your illness more effectively. The book concludes with a good humored, frank discussion about how to cope, day in and day out, with an uncertain future--how to be a "person living with" scleroderma, not a "victim suffering from" it. The new edition has updated chapters on the genetics of scleroderma and on new treatments for complications of this disease. Touching on virtually every aspect of this disorder, The Scleroderma Book provides a reliable source of information and reassurance for patients of any age and no matter how severe their form of the disease. Endorsed by the leading national advocate group, The Scleroderma Foundation
|The First Year: Scleroderma: An Essential Guide for the Newly Diagnosed (The First Year Series)|
by Karen Gottesman (Author), Daniel E. Furst (Foreword)
Sclerodermaa chronic autoimmune condition that causes hardening, thickening, or tightening of the skin and attacks the heart, lungs, kidneys, and gastrointestinal tractis extraordinarily difficult to diagnose and can take a huge toll on the psychological well-being of the individual. From the first moment of her diagnosis, author Karen Gottesman took charge and educated herself on every aspect of her condition. Now, as a "patient-expert," she guides those newly diagnosed step by step...
|Scleroderma: The Proven Therapy that Can Save Your Life|
by Henry Scammell (Author)
Scleroderma, which affects as many as 400,000 Americans, starts off like skin cancer but is far more deadly. This new edition is updated with new information about the best therapy for this disease, including the results of the landmark first, and a new, second clinical trial of the only therapy to report reversal and remission of this deadly disease.
|If You Have to Wear an Ugly Dress, Learn to Accessorize: Guidance, Inspiration, and Hope for Women with Lupus, Scleroderma, and Other Autoimmune Illnesses|
by Linda McNamara (Author), Karen Kemper (Author)
"Lupus and scleroderma are our shadows but they do not define us. We may have to wear the ugly dresses of chronic illness but we don't have to be the ugly dresses." -- Linda and Karen
If you are experiencing a long-term illness or disability, this book is for you -- as well as your family and friends. The authors share a collection of deeply personal stories and poetry to describe their journey from illness to health, well-being, and fruitful living. Their creative life...
|Voices of Scleroderma, Vol. 1|
by International Scleroderma Network (Author)
A comprehensive book of scleroderma medical and support information, with articles by world experts in scleroderma and caregiving, as well as over 100 true stories from those affected by scleroderma.
|The Immune System Recovery Plan: A Doctor's 4-Step Program to Treat Autoimmune Disease|
by Susan Blum (Author), Mark Hyman (Foreword), Michele Bender (Foreword)
One of the most sought-after experts in the field of functional medicine shares her proven four-step program to treat, reverse, and prevent autoimmune conditions and repair your immune system.
• Are you constantly exhausted?
• Do you frequently feel sick?
• Are you hot when others are cold, or cold when everyone else is warm?
• Do you have trouble thinking clearly, aka “brain fog”?
• Do you often feel irritable?
• Are you...
|A Body Out of Balance: Understanding and Treating Sjorgen's Syndrome|
by Nancy Carteron (Author), Ruth Fremes (Author)
One of the most common yet underrecognized autoimmune and rheumatological disorders. Sjögren's (pronounced SHOW-grens) syndrome, or SjS, affects more people than rheumatoid arthritis and lupus combined. Difficult to diagnose, SjS is characterized by symptoms that shift almost daily, usually beginning with vague discomforts such as dry eyes and dry mouth, then advancing to more severe concerns such as joint pain and swollen glands. A Body Out of Balance provides a comprehensive...
|Voices of Scleroderma, Vol. 3|
by International Scleroderma Network (Author)
“I highly recommend this book for patients, caregivers, and medical professionals who want quality medical information and support for scleroderma and related illnesses. “Access to high quality reliable modern information is crucial to patient well-being and outcomes. The realization that ‘you ARE NOT alone’ has therapeutic value in its own right. “The nonprofit International Scleroderma Network (ISN) and its website at www.sclero.org enjoys a well-deserved reputation for top-notch...
|Holding On For Dear Life: What My Fatal Diagnosis Taught Me About Living|
by Liz DeVivo (Author), Domenick Russo Jr. (Cover Design)
In 2000, Liz DeVivo was a young mother and a Social Worker when she became ill with Scleroderma. Months later, she was devastated when diagnosed with another rare disease, severe Pulmonary Hypertension. The two rare illnesses made for a very poor prognosis and her health rapidly deteriorated, her only hope became a transplant. She blends her story with practical and beautiful insights on coping and surviving a catastrophic illness. Her book encourages and outlines the practical steps necessary...
|Connective Tissue Diseases: Holistic Therapy Options--Sjoegrens Syndrome; Systemic Sclerosis - Scleroderma; Systemic Lupus Erythematosus; Discoid Lupus Erythematosus; Secondary and Primary Raynauds phenomenon; Raynauds Disease; Polymyositis Dermatomyositis|
by Hannelore Helbing-Sheafe Ph.D (Author)
Hannelore Helbing-Sheafe’s constant struggle with her health was a powerful motivator to investigate possible ways to help herself and others. The focus of her practice was always on finding the cause of the problem and instructing patients in using correct nutrients and/or natural medicine and therapy to correct and reverse existing health problems. Her main focus has been to seek balance in all body systems. Connective Tissue Diseases - Holistic Therapy Options provides valuable information...
|Breathing Again. . . A Joyous Miracle: My Journey with Scleroderma|
by Linda M. Edwards (Author)
Focused on her busy career, rising through the ranks of management in high-tech, it was easy for Linda Edwards to dismiss individual symptoms as they appeared, especially when doctors told her they were not life-threatening. Even with her eventual diagnosis of scleroderma, her positive outlook, resilience, and faith kept her pushing through life. It wasn’t until she was facing death, frail, and her breathing compromised, that she realized it would take a miracle to save her. Join Linda on her...