Nav: Home

Family donates $1.25 million to Be The Match Foundation to support clinical trial candidates

January 17, 2017

MINNEAPOLIS--January 17, 2017--Every year, thousands of patients are diagnosed with blood cancers and other life-threatening diseases--and for many patients, treatments through clinical trials provide hope and potential cures. But for patients and their families, the process of finding and enrolling in clinical trials can be a challenging, frustrating process.

That is why the Carter family of Wayzata, Minn., has provided a generous $1.25 million donation to Be The Match Foundation®, the fundraising organization that supports Be The Match®, the world's leading nonprofit organization focused on saving lives through bone marrow and umbilical cord blood transplantation. Be The Match will use the provided funds to create and promote The Jason Carter Clinical Trials Program, which will help blood cancer patients identify and enroll in clinical trials more efficiently.

Studies show that patients on clinical trials have better outcomes than those who do not participate, but several enrollment barriers exist that prevent patients from participating.

The Carter family knows these barriers intimately and is dedicated to helping other patients navigate the opportunities to join clinical trials. Their son and brother, Jason Carter, battled leukemia for 4 ¼ years until he passed away at the age of 28 in May 2016. Jason's journey was challenging, but his participation in two clinical trials extended his life, gave him more time with his family and provided his best chance for a cure.

The family's extensive search for clinical trials exposed critical needs in the process. This new program, created in his name, will provide the following resources to support patients and their families:

  1. Centralized resource website where patients will learn about clinical trials, including a suite of multimedia tools and a searchable system with summary snapshots to find relevant trials.

  2. Clinical trials education specialist to provide one-on-one support for patients and families who have questions as they navigate the site.

  3. Physician awareness and education will be included because many patients depend solely on their doctor to advise them about potential treatment options, including clinical trials.

  4. Outreach and promotion for the three initiatives described above so people will find the resources and to extend our reach to impact more patients, families and physicians.

"We hoped Jason would live long enough to find a cure. He had an indomitable will to live and to beat his disease. He tried every new treatment and new therapy possible. It was still not enough. Only 5 percent of cancer patients take part in clinical trials. That number must greatly increase for outcomes to improve more quickly," said Jason's parents, Robert and Diana Carter. "Jason wanted to make a difference. The Jason Carter Clinical Trials Program will bring a greater transparency to opportunities that exist for patients and better inform their families of requirements for participation. We are thrilled to partner with Be The Match to improve this process and help other patients find the best treatment resources available. Together, we can help save lives."

"This donation from the Carter family will have a profound impact on patients and families for years to come," said Joy King, Senior Vice President of Philanthropy and Executive Director for Be The Match Foundation. "We could not be more honored and excited to carry out Jason's legacy through this new program. We sincerely thank the Carter family for their generosity and compassion for all patients."
About Be The Match Foundation®

Be The Match Foundation® raises funds to help provide marrow and umbilical cord blood transplants to patients with life-threatening blood cancers--like leukemia and lymphoma--or other diseases. With the public's help, the foundation gives patients a reason to hope and the power to heal. Foundation funds deliver tangible relief to patient families struggling with uninsured transplant costs, help add more potential marrow donors to Be The Match Registry® and support new research discoveries.

Be The Match® is operated by the National Marrow Donor Program® (NMDP), a nonprofit organization that matches patients with donors, educates health care professionals and conducts research so more lives can be saved.

To support the cure, visit or call 1 (800) 507-5427.


Related Bone Marrow Articles:

Viagra shows promise for use in bone marrow transplants
Researchers at UC Santa Cruz have demonstrated a new, rapid method to obtain donor stem cells for bone marrow transplants using a combination of Viagra and a second drug called Plerixafor.
Bone marrow may be the missing piece of the fertility puzzle
A woman's bone marrow may determine her ability to start and sustain a pregnancy, report Yale researchers in PLOS Biology.
Cells that make bone marrow also travel to the womb to help pregnancy
Bone marrow-derived cells play a role in changes to the mouse uterus before and during pregnancy, enabling implantation of the embryo and reducing pregnancy loss, according to research published Sept.
Uncovering secrets of bone marrow cells and how they differentiate
Researchers mapped distinct bone marrow niche populations and their differentiation paths for the bone marrow factory that starts from mesenchymal stromal cells and ends with three types of cells -- fat cells, bone-making cells and cartilage-making cells.
Zebrafish help researchers explore alternatives to bone marrow donation
UC San Diego researchers discover new role for epidermal growth factor receptor in blood stem cell development, a crucial key to being able to generate them in the laboratory, and circumvent the need for bone marrow donation.
More Bone Marrow News and Bone Marrow Current Events

Best Science Podcasts 2019

We have hand picked the best science podcasts for 2019. Sit back and enjoy new science podcasts updated daily from your favorite science news services and scientists.
Now Playing: TED Radio Hour

Erasing The Stigma
Many of us either cope with mental illness or know someone who does. But we still have a hard time talking about it. This hour, TED speakers explore ways to push past — and even erase — the stigma. Guests include musician and comedian Jordan Raskopoulos, neuroscientist and psychiatrist Thomas Insel, psychiatrist Dixon Chibanda, anxiety and depression researcher Olivia Remes, and entrepreneur Sangu Delle.
Now Playing: Science for the People

#537 Science Journalism, Hold the Hype
Everyone's seen a piece of science getting over-exaggerated in the media. Most people would be quick to blame journalists and big media for getting in wrong. In many cases, you'd be right. But there's other sources of hype in science journalism. and one of them can be found in the humble, and little-known press release. We're talking with Chris Chambers about doing science about science journalism, and where the hype creeps in. Related links: The association between exaggeration in health related science news and academic press releases: retrospective observational study Claims of causality in health news: a randomised trial This...