Nephrology and Public Policy Committee (NPPC) aims to intensify research activity

June 14, 2019

"Epidemiological and clinical research and public policy in Europe are generally considered to be comprehensive and successful, but there is potential for improvement and scope for new opportunities", explains Professor Ziad A. Massy, Paris/France, Chair of the Nephrology and Public Policy Committee. "Especially in nephrology we have to further intensify our research activities. With 850 million people suffering from kidney diseases of any kind worldwide, nephrology has to be one of the main areas of medical research."

In 2013 a paper [1] showed that of 40,970 trials overall, only 1,054 (2.6%) were classified as nephrology. The majority of nephrology trials were for treatment (75.4%) or prevention (15.7%), with very few diagnostic, screening, or health services research studies. "Although many trials in nephrology have been initiated within the last 5-8 years, we still have to catch up. In my view it is especially important to generate epidemiologic and health care data in order to sensitize the public as well as policy makers to kidney diseases. It is high time to put the global spread of kidney diseases into focus."

To enhance research activities in nephrology, the NPPC worked out a research plan to be supported by the ERA-EDTA over the next five years. The main outline of the plan has been comprehensively described in a paper that was published in NDT yesterday [2]. Eight action points form the backbone of the plan and will stimulate research collaboration and grant applications in Europe under the umbrella of ERA EDTA:[1] Inrig JK, Califf, RM, Tasneem A et al. The Landscape of Clinical Trials in Nephrology: A Systematic Review of ClinicalTrials.gov. Am J Kidney Dis 2014; 63(5): 771-780

[2] Massy ZA. et al.. Nephrology and Public Policy Committee propositions to stimulate research collaboration in adults and children in Europe. NDT 2019, June 14 [epub]
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About ERA-EDTA

With more than 7,000 active members, the ERA-EDTA is one of the biggest nephrology associations worldwide leading European nephrology and one of the most important European Medical Associations. It organises annual congresses and a Scientific Education Interactive Day (SEID), it produces guidelines, it collects data and performs epidemiological studies through its Registry. It supports fellowships and research projects. Its publications are NDT and CKJ (this last journal is Open Access). The ERA-EDTA also has an online Educational platform: the European Nephrology Portal (ENP) which includes NDT-Educational@ENP. The 2020 Congress will be held June 6-9 in Milan (Italy). Visit the booth to receive more information! Web site: http://www.era-edta.org

ERA-EDTA

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