Nav: Home

Shared decision-making is cornerstone of multiple sclerosis treatment

June 20, 2017

MAYWOOD, IL - One of the cornerstones of multiple sclerosis treatment is shared decision-making between patients and their doctors and nurses, according to a report in the journal Practical Neurology.

"Patients with MS are often very interested and involved in their own disease management and therefore should be empowered to play an active role in their care," wrote author Amy Perrin Ross, APN, MSN, CNRN, MSCN. "Shared decision-making is therefore essential to optimal treatment and quality of life for patients with MS."

Ms. Perrin Ross, a board-certified neuroscience nurse, is neuroscience program coordinator at Loyola University Medical Center and a member of the board of directors of the Consortium of Multiple Sclerosis Centers.

In shared decision-making, the clinician and patient work together to make decisions and select tests, treatments and care plans. The process encompasses evidence-based treatments as well as lifestyle and environmental factors. The clinician educates the patient about the disease and makes recommendations based on risk factors, genetic factors, potential triggers and other elements.

"After reviewing and educating patients about the available options, clinicians should take time to listen to the patient and learn about their values and preferences, as these should be taken into account during consideration of optimal treatment," Ms. Perrin Ross wrote. "The more patients are involved in shared decision-making, the more likely they will be adherent to the therapy and lifestyle recommendations we might be making for them."

The five steps of shared decision-making are:

  • Engage patient participation
  • Explore and compare treatment options
  • Assess patient values and preferences
  • Reach a decision on treatment with the patient
  • Evaluate the patient decision

A comprehensive team approach, like the one used at Loyola Medicine, often is needed to ensure patients are well informed about effective treatments and a healthy lifestyle. The team can include a neurologist, nurse, physician assistant, primary care provider, physical therapist, occupational therapist, speech therapist, podiatrist, psychiatrist, urologist, nutritionist and pharmacist. A nurse coordinator or nurse case manager can help coordinate care and guide patients through the process.

Shared decision-making can be time consuming, especially in the beginning. But the more patients feel they are supported, "the more comfortable they are to manage their own disease and feel empowered to make decisions about their care and their lives," Ms. Perrin Ross wrote.

The article is titled "Shared Decision-Making in Multiple Sclerosis Management."
-end-


Loyola University Health System

Related Disease Articles:

Contact sports associated with Lewy body disease, Parkinson's disease symptoms, dementia
There is mounting evidence that repetitive head impacts from contact sports and other exposures are associated with the neurodegenerative disease chronic traumatic encephalopathy (CTE) and dementia.
In kidney disease patients, illicit drug use linked with disease progression and death
Among individuals with chronic kidney disease, hard illicit drug use was associated with higher risks of kidney disease progression and early death.
Parkinson's disease among patients with inflammatory bowel disease
Patients with inflammatory bowel disease appeared more likely than patients without the disorder to develop Parkinson's disease, while anti-tumor necrosis factor therapy for inflammatory bowel disease was associated with reduced incidence of Parkinson's in a new study that analyzed administrative claims data for more than 170 million patients.
Despite reductions in infectious disease mortality in US, diarrheal disease deaths on the rise
Deaths from infectious diseases have declined overall in the United States over the past three decades.
Defects on regulators of disease-causing proteins can cause neurological disease
Mutations in human PUMILIO1, a gene that regulates Ataxin1 production, cause conditions similar to spinocerebellar ataxia type 1 (SCA1).
Diabetes drug shows potential as disease-modifying therapy for Parkinson's disease
A drug commonly used to treat diabetes may have disease-modifying potential to treat Parkinson's disease, a new UCL-led study in The Lancet suggests, paving the way for further research to define its efficacy and safety.
Findings support role of vascular disease in development of Alzheimer's disease
Among adults who entered a study more than 25 years ago, an increasing number of midlife vascular risk factors, such as obesity, high blood pressure, diabetes, high cholesterol and smoking, were associated with elevated levels of brain amyloid (protein fragments linked to Alzheimer's disease) later in life, according to a study published by JAMA.
Dietary factors associated with substantial proportion of deaths from heart disease, stroke, and disease
Nearly half of all deaths due to heart disease, stroke, and type 2 diabetes in the US in 2012 were associated with suboptimal consumption of certain dietary factors, according to a study appearing in the March 7 issue of JAMA.
Study links changes in oral microbiome with metabolic disease/risk for dental disease
A team of scientists from The Forsyth Institute and the Dasman Diabetes Institute in Kuwait have found that metabolic diseases, which are characterized by high blood pressure, high blood sugar, and obesity -- leads to changes in oral bacteria and puts people with the disease at a greater risk for poor oral health.
Fatty liver disease contributes to cardiovascular disease and vice versa
For the first time, researchers have shown that a bi-directional relationship exists between fatty liver disease and cardiovascular disease.
More Disease News and Disease Current Events

Top Science Podcasts

We have hand picked the top science podcasts of 2019.
Now Playing: TED Radio Hour

Risk
Why do we revere risk-takers, even when their actions terrify us? Why are some better at taking risks than others? This hour, TED speakers explore the alluring, dangerous, and calculated sides of risk. Guests include professional rock climber Alex Honnold, economist Mariana Mazzucato, psychology researcher Kashfia Rahman, structural engineer and bridge designer Ian Firth, and risk intelligence expert Dylan Evans.
Now Playing: Science for the People

#541 Wayfinding
These days when we want to know where we are or how to get where we want to go, most of us will pull out a smart phone with a built-in GPS and map app. Some of us old timers might still use an old school paper map from time to time. But we didn't always used to lean so heavily on maps and technology, and in some remote places of the world some people still navigate and wayfind their way without the aid of these tools... and in some cases do better without them. This week, host Rachelle Saunders...
Now Playing: Radiolab

Dolly Parton's America: Neon Moss
Today on Radiolab, we're bringing you the fourth episode of Jad's special series, Dolly Parton's America. In this episode, Jad goes back up the mountain to visit Dolly's actual Tennessee mountain home, where she tells stories about her first trips out of the holler. Back on the mountaintop, standing under the rain by the Little Pigeon River, the trip triggers memories of Jad's first visit to his father's childhood home, and opens the gateway to dizzying stories of music and migration. Support Radiolab today at Radiolab.org/donate.