Current Informed Consent News and Events

Current Informed Consent News and Events, Informed Consent News Articles.
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Perception critical to women's breast reconstruction decision making
Women who undergo surgical treatment for breast cancer often also have reconstructive surgery but new research from QUT in Australia reveals many feel left out of the decision making process. Approximately one in every three women surveyed stated their surgeon had more input than they did. (2021-02-18)

COVID-19 in Africa is severely underestimated, finds Zambia study by Boston University
A new Boston University School of Public Health (BUSPH) study in Lusaka, Zambia's capital, challenges the common belief that Africa somehow 'dodged' the COVID-19 pandemic. The findings indicate that low numbers of reported infections and deaths across Africa may simply be from lack of testing, with the coronavirus taking a terrible but invisible toll on the continent. (2021-02-18)

Front-of-package product names and ingredient lists of infant and toddler food can be hard to navigate
Early exposure to nutritious foods may help children develop more healthful eating habits, but package labels can make it difficult for parents to understand what they are feeding their young children, according to a new study in the Journal of Nutrition Education and Behavior, published by Elsevier. (2021-02-08)

Can the brain resist the group opinion?
Scientists at HSE University have learned that disagreeing with the opinion of other people leaves a 'trace' in brain activity, which allows the brain to later adjust its opinion in favour of the majority-held point of view. The article was published in Scientific Reports. (2021-02-08)

Tort claim could ensure doctors inform women of risk of stillbirth
As part of standard patient protocol, doctors inform women of the risks of pregnancy. But there is one exception to this standard: stillbirth. University of Arkansas law professor Jill Wieber Lens argues that women have a right to know of the risk of stillbirth, and, consistent with the evolution of informed consent law, this right should be enforceable through a medical malpractice tort claim. (2021-01-29)

Children can bypass age verification procedures in popular social media apps
Children of all ages can completely bypass age verification measures to sign-up to the world's most popular social media apps including Snapchat, Instagram, TikTok, Facebook, WhatsApp, Messenger, Skype and Discord by simply lying about their age, researchers at Lero, the Science Foundation Ireland Research Centre for Software have found. (2021-01-27)

Corona vaccination: Approach receives approval
Anyone who belongs to a risk group, lives in a nursing home or works in healthcare is first entitled to a vaccination against the novel coronavirus. The order for vaccination protection is regulated by the national vaccination strategy. As the results of the 27th edition of the BfR-Corona-Monitor, a regular survey conducted by the German Federal Institute for Risk Assessment (BfR), show, the majority of the population approves of this approach. (2021-01-26)

New insights into pancreatitis
Acute Pancreatitis (AP) is one of the most common diseases around the world. Associated with a considerable risk of morbidity and even death in patients who suffer a severe form of the disease, to date there is no specific treatment for it. Now international AP experts have published a roadmap in the journal Gut (BMJ) pinpointing the two most significant thresholds in the disease that could serve as a starting point for targeting treatment strategies for this extremely painful condition. (2021-01-13)

Cats may help increase empathy, decrease anxiety for kids with autism
While there is plenty of existing research emphasizing the benefits of dogs for children with autism, Carlisle's newest study has found cats may help increase empathy while decreasing separation anxiety for children with autism. (2021-01-12)

Consent forms design influences patient willingness to share personal health information
Patients are sometimes asked to share their personal health information for research purposes. Informed consent and trust are critical components in a patient's decision to participate in research. Researchers at the University of Florida conducted a three-arm randomized controlled trial to compare the effects on patient experiences of three electronic consent (e-consent) designs that asked them to share PHI for research purposes. (2021-01-12)

Delivering the news with humor makes young adults more likely to remember and share
Could the merging of humor and news actually help inform the public? New research from the Annenberg School at the University of Pennsylvania and the School of Communication at Ohio State University found that young people were more likely to remember information about politics and government policy when it was conveyed in a humorous rather than non-humorous manner. They were also more willing to share the information online. (2021-01-07)

College football players underestimate risk of injury and concussion
College football players may underestimate their risk of injury and concussion, according to a new study published today in JAMA Network Open. Christine Baugh, PhD, MPH, assistant professor of medicine at the University of Colorado School of Medicine and member of the CU Center for Bioethics and Humanities, is the corresponding author of the article, ''Accuracy of US College Football Players' Estimates of Their Risk of Concussion or Injury.'' (2020-12-29)

Americans underestimate public support for key gun policies
Gun safety policies, including universal background checks and mandatory waiting periods, receive wide support among American gun owners, yet most Americans fail to recognize this fact, a new study suggests. That disconnect may make it hard to adopt these policies, according to the researchers. (2020-12-22)

When genetic data meets marketing
The use of genetic data has much potential for marketing purposes, but also poses serious threats. (2020-12-17)

Discriminatory policies threaten care for transgender, gender diverse individuals
The Endocrine Society and the Pediatric Endocrine Society oppose legislative efforts to block transgender and gender diverse individuals from accessing gender-affirming medical and surgical care, the two medical societies said in a joint policy perspective published in The Journal of Clinical Endocrinology & Metabolism. (2020-12-16)

Behavioral strategies to promote a national COVID-19 vaccine program
National efforts to develop a coronavirus disease 2019 (COVID-19) vaccine at 'warp speed' will likely yield a safe and effective vaccine by early 2021. However, this important milestone is only the first step in an equally important challenge: getting a majority of the U.S. public vaccinated. (2020-12-14)

COVID-19 news from Annals of Internal Medicine
1. Accounting for recent population aging is critical for estimating non-COVID-19 excess deaths in the U.S. ; 2. During pandemic, researchers may need guidance on informed consent exceptions (2020-12-14)

Young people embrace new model of teaching sexual consent, study finds
Sexual health charity Brook has adopted these latest research findings in its teaching methods (2020-12-11)

From publication bias to lost in information
From publication bias to lost in information In BMJ Evidence-Based Medicine, IQWiG researchers call for a central, public and worldwide portal for clinical trials (2020-12-11)

FEFU scientists suggest using neuromodulation to treat patients with spinal cord injuries
Scientists from Far Eastern Federal University (FEFU) together with leading international experts suggest reconsidering the existing treatment protocol for severe spasticity, one of the main complications after spinal cord injury with partial spinal cord disruption. Spasticity aggravates a patient's state and dramatically reduces the prospects of rehabilitation. The new treatment protocol has been run at FEFU Medical Center. A related article was published in the Progress in Brain Research journal. (2020-12-10)

Preschool program linked with better social and emotional skills years later
A preschool enrichment program developed at Penn State helps boost social and emotional skills that still have positive effects years later during middle and high school, according to a new study. (2020-12-10)

Science leaders issue clarion call for evidence-based policy
Since the early days of the COVID-19 pandemic, US science leaders and others have expressed frustration with the lack of an informed and coherent federal response, a sentiment that echoes objections to the handling of other pressing issues, such as climate change. Writing in BioScience, past presidents of the American Institute of Biological Sciences (AIBS) have issued an appeal for the reinvigoration of sound policy and governance through the careful consideration of sound science. (2020-12-08)

No 'one-size-fits-all solution' for children exposed to domestic violence, researchers say
Researchers at Case Western Reserve University surveyed 105 agencies throughout Ohio to better understand service, policy and research needs--and get feedback about potential strategies to protect children from intimate partner violence. (2020-12-03)

The (un)social network: The emergence of digital thought clones and what to do about them
A groundbreaking study published in Information & Communications Technology Law by experts at the Centre for Law and Development at Qatar University discusses the legal and ethical implications of Big Tech's development of ''digital thought clones.'' Digital thought clones can allow technology companies to accurately predict and influence people's behavior according to their digital habits. The authors call for legislation to protect people from technology companies' malicious use of their digital footprint. (2020-12-01)

Field research has changed, and so should ethical guidelines, Brown professor says
A social scientist at Brown is calling on research institutions, leading scientific journals and national professional associations to establish new ethical standards that protect human subjects from emotional, financial and political manipulation. (2020-11-16)

Recommendations for fair and regulated access to a COVID-19 vaccine
The first COVID-19 vaccines could be authorized as early as the start of 2021. However, in all likelihood, there will not be sufficient vaccine doses in the beginning for all the people willing to undergo vaccination. This is why prioritization will be necessary. In the position paper published today, medical-epidemiological aspects of infection prevention are presented alongside ethical, legal and practical considerations. On this basis, the authors develop a framework for action for the initial prioritization of vaccination measures against COVID-19. (2020-11-09)

Decision conflict before cancer surgery correlates with lower activity after surgery
Nearly one-third of cancer patients who decide to undergo surgery for their condition may have second thoughts, and this decision conflict may lead to less favorable treatment outcomes in both the near- and long-term, according to a team of investigators at Massachusetts General Hospital and Ariadne Labs. (2020-10-29)

The National Human Genome Research Institute publishes new vision for human genomics
The National Human Genome Research Institute this week published its 'Strategic vision for improving human health at The Forefront of Genomics' in the journal Nature. This vision describes the most compelling research priorities and opportunities in human genomics for the coming decade, signaling a new era in genomics for the Institute and the field. (2020-10-28)

Researchers analyze studies of interventions to prevent violence against children
Numerous studies have examined interventions aimed at preventing violence against children. A recent analysis reveals various gaps not adequately addressed by these studies. (2020-10-21)

Highly effective tumor detection strategy for common childhood brain tumors
A team of scientists at Texas A&M University, Baylor College of Medicine and Texas Children's Hospital have developed a way to more accurately both detect and monitor a common type of pediatric brain cancer, setting the stage for giving clinicians a real-time view into how the cancer responds to treatment. (2020-10-21)

More research needed to determine safety of hip and knee steroid injections
Although frequently used to treat painful osteoarthritis of the hip and knee, intra-articular corticosteroid (IACS) injections remain controversial. Questions about whether damage to joints occurs as a result of these injections, which are performed thousands a time each day, persist. (2020-10-20)

Researchers take issue with study evaluating an AI system for breast cancer screening
In a new perspective piece 'Transparency and reproducibility in artificial intelligence' published this week in the journal Nature, an international group of scientists including CUNY Graduate School of Public Health and Health Policy (CUNY SPH) Associate Professor Levi Waldron raised concerns about the lack of transparency in publication of artificial intelligence algorithms for health applications. (2020-10-14)

New blood test predicts which COVID-19 patients will develop severe infection
Scientists have developed, for the first time, a score that can accurately predict which patients will develop a severe form of Covid-19. (2020-10-14)

As genome-editing trials become more common, informed consent is changing
As public interest and expanded research in human genome editing grows, many questions remain about ethical, legal and social implications of the technology. People who are seriously ill may overestimate the benefits of early clinical trials while underestimating the risks. This makes properly understanding informed consent, the full knowledge of risks and benefits of treatments, especially important. (2020-10-12)

E-modules increase knowledge, attitude and confidence related to childhood adversity and trauma-informed care
Training health care professionals in the skills and capacity to respond adequately to children and adults who have been exposed trauma, such as adverse childhood experiences (ACEs), is recognized as an essential need in health care. But opportunities to educate physicians and physician-trainees in the science of childhood adversity and trauma-informed care are limited. (2020-10-12)

COVID-19 pandemic has created flood of potentially substandard research
The COVID-19 pandemic has created a flood of potentially substandard research amid the rush to publish, with a string of papers retracted or under a cloud and a surge in submissions to pre-print servers where fewer quality checks are made, a leading ethicist has warned in the Journal of Medical Ethics. (2020-10-01)

OU-led study aims to use microbial information to inform global climate change models
A study led by researchers from the OU Institute of Environmental Genomics tackles a problem that has challenged scientists for more than a decade. The findings from which may have important implications for understanding and predicting the ecological consequences of climate warming. (2020-09-29)

BrainHealth's SMART methodology helps patients make more informed treatment decisions
Researchers at Center for BrainHealth® collaborated with scientists at the University of North Carolina at Chapel Hill to examine whether the SMART program affects people's abilities to make informed decisions about their medical treatment options. Patients with rheumatoid arthritis are often reluctant to take antirheumatic drugs because of perceptions about the drugs' risks and benefits. The findings point to an approach that helps these patients, and other people, make more informed decisions about their health. (2020-09-23)

Mayo study identifies barriers to physician adoption of federal Right to Try law
A new study published in the Journal of the National Cancer Institute is the first to examine the opinions and experiences of clinical oncologists working at a major medical center on the Federal Right to Try (RTT) law. (2020-09-22)

Some children at higher risk of privacy violations from digital apps
While federal privacy laws prohibit digital platforms from storing and sharing children's personal information, those rules aren't always enforced, researchers find. (2020-09-08)

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