We are excited to share an important milestone for the NR2F1 Foundation: Leora Westbrook has joined our organization as our first Executive Director.
Since the Foundation was established in 2018, our work has been driven entirely by families and volunteers dedicated to advancing research, supporting families, and building a global community affected by Bosch–Boonstra–Schaaf Optic Atrophy Syndrome (BBSOAS). Together, we have built something truly special, powered by determination, collaboration, and hope.
Now, we are entering an exciting new chapter.
Leora joins the Foundation at a crucial moment as we transition from a fully volunteer-led organization to one supported by professional leadership and infrastructure. This change will enable us to strengthen our operations, broaden our reach, and speed up progress toward treatments for BBSOAS.
As Executive Director, Leora will work closely with our President, Board of Directors, Scientific Advisory Board, and the global community to improve the Foundation’s long-term sustainability, increase fundraising and partnerships, raise awareness of BBSOAS, and foster collaboration among researchers, clinicians, and families.
Leora brings extensive experience in healthcare, nonprofit leadership, and fundraising, along with a strong commitment to mission-driven work. Her leadership will help ensure that as the Foundation expands, we stay focused on what matters most: advancing research and supporting the BBSOAS community.
“This step reflects how far our community has come—and how much more we can achieve together,” said Jennifer Coughlin, President of the NR2F1 Foundation.
We are deeply grateful to our families, volunteers, partners, and supporters who have made this moment possible. Your dedication has brought us here, and your ongoing support will shape what’s next.
Please join us in warmly welcoming Leora to the NR2F1 Foundation family. We look forward to the journey ahead.
Welcome, Leora!
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