NEW YORK, NY – January 6, 2026 – The Crohn’s & Colitis Foundation today revealed compelling new research pointing to major healthcare access challenges and financial burdens disproportionately affecting young adults with Inflammatory Bowel Disease (IBD). The national survey, conducted by the Foundation, assessed healthcare and financial experiences across three groups: young adults aged 18-25, adults aged 26-64, and caregivers of pediatric patients under 18.
The findings, published today in Crohn’s & Colitis 360 , are based on responses from over 1,700 IBD patients and caregivers.
Key Findings:
The goal of the survey was to assess the state of access to care for patients with IBD, which includes Crohn’s disease and ulcerative colitis and affects approximately 1 in 100 Americans. The study was conducted as an online survey of IBD patients and their caregivers in the United States from February to June 2023.
“These numbers demonstrate a clear gap in support and guidance for young adults as they transition from pediatric care and begin managing their own health insurance,” said Laura Wingate, Chief Education, Support & Advocacy Officer at the Crohn's & Colitis Foundation. “The data show that not only are younger patients at greater risk of having to jump through insurance hoops to access essential medications, they also face substantial financial pressure—often working extra jobs just to afford care.”
“The research highlights a need for targeted educational resources, improved insurance navigation assistance, and policy attention to mitigate the unique challenges faced by young adults with IBD,” said the study’s lead author, Ross Maltz, MD, pediatric gastroenterologist, Nationwide Children’s Hospital.
The Foundation is calling on partners, advocates, and the broader healthcare community to help amplify these findings and promote equitable access to care for all age groups.
About the Crohn's & Colitis Foundation
The Crohn's & Colitis Foundation is the leading non-profit organization focused on both research and patient support for inflammatory bowel disease (IBD). The Foundation's mission is to cure Crohn's disease and ulcerative colitis and to improve the quality of life for the millions of Americans living with IBD. For more information, visit crohnscolitisfoundation.org, call 888-694-8872, or email info@crohnscolitisfoundation.org.
Crohn s & Colitis 360
Survey
Not applicable
6-Jan-2026