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Idiopathic hypersomnia is a rare disease of excessive sleepiness, with patients revealing they never feel rested or awake no matter how much sleep they get, in analysis of online posts

10.22.25 | PLOS

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The experience and impact of living with idiopathic hypersomnia: A qualitative study of patient perspectives shared in online media
Impacts of idiopathic hypersomnia; “n” is the number of people with idiopathic hypersomnia (PwIH) in the sample referring to each impact. Each PwIH could be included in more than one sub-domain for each impact domain. Credit: Bermingham et al., 2025, PLOS One, CC-BY 4.0 (https://creativecommons.org/licenses/by/4.0/)

Idiopathic hypersomnia is a rare disease of excessive sleepiness, with patients revealing they never feel rested or awake no matter how much sleep they get, in analysis of online posts

Article URL : http://plos.io/3KIF6W5

Article title: The experience and impact of living with idiopathic hypersomnia: A qualitative study of patient perspectives shared in online media

Author countries: U.S., Germany, Canada

Funding: This study was funded by Takeda Pharmaceuticals USA.

PLOS One

10.1371/journal.pone.0333497

The experience and impact of living with idiopathic hypersomnia: A qualitative study of patient perspectives shared in online media

22-Oct-2025

SLB is an employee of Takeda Pharmaceuticals USA., and stockholder of Takeda Pharmaceuticals Company, Ltd. AS and EB are employees of Gemic. DTP has served as a consultant and/or advisory board member for Aditum Bio, LLC, Alkermes, Centessa, Harmony Biosciences, Jazz Pharmaceuticals, Takeda, and Teva Pharmaceuticals (Australia). This does not alter our adherence to PLOS ONE policies on sharing data and materials.

Keywords

Diseases and Disorders Health and Medicine Insomnia Psychological Science Sleep Disorders Social Sciences

Article Information

Journal
PLOS One
DOI
10.1371/journal.pone.0333497
Article Publication Date
2025-10-22
Article Title
The experience and impact of living with idiopathic hypersomnia: A qualitative study of patient perspectives shared in online media
COI Statement
SLB is an employee of Takeda Pharmaceuticals USA., and stockholder of Takeda Pharmaceuticals Company, Ltd. AS and EB are employees of Gemic. DTP has served as a consultant and/or advisory board member for Aditum Bio, LLC, Alkermes, Centessa, Harmony Biosciences, Jazz Pharmaceuticals, Takeda, and Teva Pharmaceuticals (Australia). This does not alter our adherence to PLOS ONE policies on sharing data and materials.

Contact Information

Hanna Abdallah
PLOS
onepress@plos.org

How to Cite This Article

APA:
PLOS. (2025, October 22). Idiopathic hypersomnia is a rare disease of excessive sleepiness, with patients revealing they never feel rested or awake no matter how much sleep they get, in analysis of online posts. Brightsurf News. https://www.brightsurf.com/news/8J47JX4L/idiopathic-hypersomnia-is-a-rare-disease-of-excessive-sleepiness-with-patients-revealing-they-never-feel-rested-or-awake-no-matter-how-much-sleep-they-get-in-analysis-of-online-posts.html
MLA:
"Idiopathic hypersomnia is a rare disease of excessive sleepiness, with patients revealing they never feel rested or awake no matter how much sleep they get, in analysis of online posts." Brightsurf News, Oct. 22 2025, https://www.brightsurf.com/news/8J47JX4L/idiopathic-hypersomnia-is-a-rare-disease-of-excessive-sleepiness-with-patients-revealing-they-never-feel-rested-or-awake-no-matter-how-much-sleep-they-get-in-analysis-of-online-posts.html.