Davis, CA — The NEC Society , a nonprofit organization dedicated to preventing necrotizing enterocolitis (NEC), a devastating neonatal intestinal disease, proudly marks its 10 th anniversary . Founded by Jennifer Canvasser after the tragic loss of her son, Micah , the organization works tirelessly to build a world without NEC, the disease that killed her child and claims another child every day in the United States.
Canvasser shares, " Ten years ago, patient-families affected by NEC were isolated, and clinician-scientists worked in silos. Over the past decade, we've built an empowered community dedicated to transforming our pain into power and isolation into collaboration .”
Since 2014, the NEC Society has ignited a global movement by uniting patient-families, clinicians, scientists, and others who care. Together, the NEC Society’s diverse community is accelerating research, education, and advocacy by keeping babies and families centered in every initiative. This approach has propelled efforts to improve the understanding, prevention, diagnosis, and treatment of NEC.
Through collective action and with the dedication and support of many partners, the NEC Society is proud to celebrate 10 key achievements over 10 years:
Canvasser continues, “ Together, we are transforming what is possible for the NEC community. I am inspired by how far we have come, but as those who have witnessed the devastation of this disease understand, we still have a long way to go. We urgently need more research and improved strategies. The NEC Society will be here leading the way, keeping infants and families centered in everything we do until we achieve our vision of a world without this cruel neonatal disease .”
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