Add BrightSurf on Google Email

Necrotizing Enterocolitis (NEC) Society


Family loses child to necrotizing enterocolitis and publishes “Forever Our Little One,” a storybook for bereaved families

A mother-daughter duo has created a storybook to comfort bereaved families who have lost a child to necrotizing enterocolitis (NEC). The book, Forever Our Little One, features illustrations inspired by the family's experiences. The NEC Society will benefit from all sales, supporting research into the devastating intestinal disease.

Too many babies are still dying from serious intestinal disease, as improvements slow and disparities persist

A recent study found that Black infants in the US were disproportionately affected by necrotizing enterocolitis, with higher mortality rates compared to White infants. Despite overall improvements in NEC-related deaths between 1999 and 2020, racial disparities persisted.

SourceNecrotizing Enterocolitis (NEC) Society·JournalJAMA Network Open·TypeData/statistical analysis·DateMar 3, 2023