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Science News Archive September 2010 - Page 27


Page 27 of 27

People want to be asked before sharing genetic data

A recent study by Group Health Research Institute and the University of Washington found that 86% of patients agreed to share their de-identified genetic information in a federal database. The study suggests that researchers should ask for consent before sharing data, even if participants initially agree to it.

SourceGroup Health Research Institute·JournalJournal of Empirical Research on Human Research Ethics·DateSep 1, 2010