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Living wills are poor predictors of actual treatment preferences at the end of life

A recent study published in Journal of Palliative Medicine found that living wills often do not accurately reflect patients' actual treatment preferences at the end of life. The authors propose revising living wills to include more realistic scenarios and estimates of treatment effectiveness to guide advance care decisions.

SourceMary Ann Liebert, Inc./Genetic Engineering News·JournalJournal of Palliative Medicine·DateMay 19, 2010

The Alzheimer's solution

The Alzheimer's Solution proposes community centers for dementia care, addressing the need for novel solutions to address this disease. The centers would provide programs of care, treatment, and prevention, taking a family-oriented and personalized approach.

Study shows strong interest in palliative care programs, services and integration vary across nation

A study by University of Texas M.D. Anderson Cancer Center reveals that US cancer centers have varying levels of palliative care programs and services, with NCI-designated centers having more comprehensive programs. Despite the differences, there is strong support for integrating palliative care into oncology care.

Health care volunteers and disasters: First, be prepared

Health care volunteers can make a disaster situation worse if they are not prepared. To optimize their response, they should seek formal training in disaster medicine and register with existing volunteer organizations. They should also consider the physical and emotional challenges of working in disaster areas and be mindful of the nee...

SourceUniversity of Pennsylvania School of Medicine·JournalNew England Journal of Medicine·DateFeb 24, 2010

Roundtable discussion highlights vital role for palliative care in health-care reform

A roundtable discussion highlights palliative care's crucial role in evolving health-care reform policy, focusing on changing public perception and educating policymakers. The panel emphasizes the need for proactive education and awareness to demonstrate palliative medicine's value in improving patient outcomes.

SourceMary Ann Liebert, Inc./Genetic Engineering News·JournalJournal of Palliative Medicine·DateJan 15, 2010

Medical team's support of terminal cancer patients' spiritual needs improves quality of life

Researchers at Dana-Farber Cancer Institute found that support of patients' spiritual needs by medical teams is associated with greater use of hospice care, less aggressive treatment, and better quality of life near death. Patients whose spiritual needs were largely or completely supported had scores on average 28% higher in well-being.

SourceDana-Farber Cancer Institute·JournalJournal of Clinical Oncology·DateDec 15, 2009

Patients in US 5 times more likely to spend last days in ICU than patients in England

A new study from Columbia University found that US patients are almost five times more likely to spend their last hospital days in the ICU than patients in England. The research also revealed that ICU usage among terminal patients is eight times higher in the US than in England, particularly among those over 85.

SourceAmerican Thoracic Society·JournalAmerican Journal of Respiratory and Critical Care Medicine·DateOct 23, 2009

Institute for Aging Research study says dementia is a terminal illness

A study published in the New England Journal of Medicine found that dementia is a terminal illness characterized by uncomfortable symptoms and high mortality rates. The research highlights the need for improved palliative care in nursing homes to reduce physical suffering and enhance communication with family members.

Dying from dementia

Palliative care is crucial for dementia patients as they often suffer from untreated pain and symptoms due to their inability to report their condition. The need for improved symptom management, emotional support, and family support has been emphasized by experts.

SourceIndiana University School of Medicine·JournalNew England Journal of Medicine·DateOct 14, 2009

End of life physician-patient communication

A study found that physician-patient communication training using the Four Habits Model can have a positive impact on the delivery of end-of-life care. The training increased professional satisfaction among physicians and enhanced their ability to express condolences, advance care planning discussions, and manage family emotions.

SourceIndiana University·JournalJournal of Psychosocial Oncology·DateJul 22, 2008

Beyond the terminal: Palliative care

Palliative care is now considered an integral part of serious respiratory disorders treatment, with individualized and integrated care promoting patient-focused symptom management. The ATS clinical policy statement emphasizes comprehensive care, including professional competence development and education.

SourceAmerican Thoracic Society·JournalAmerican Journal of Respiratory and Critical Care Medicine·DateApr 15, 2008

Other highlights in the Dec. 25 JNCI

Cancer risk increases with age, yet elderly nursing home residents receive relatively few cancer care services. According to a recent study, only 28% of patients with late-stage cancer received hospice care, highlighting the need for further investigation into cancer care in this population.

SourceJournal of the National Cancer Institute·JournalJNCI Journal of the National Cancer Institute·DateDec 25, 2007

Refusal of medical and surgical interventions common among chronically ill elderly

A recent Yale University study found that 16% of chronically ill elderly patients refuse recommended medical and surgical interventions. The most frequently refused treatments were cardiac catheterization and surgery, with a combined refusal rate over 10%. Patients who refused treatments often cited fear of side effects as the primary ...

SourceYale University·JournalJournal of General Internal Medicine·DateAug 8, 2007

1 in 10 hospice patients referred 'too late,' study shows

A new study by Brown University researchers found that one in 10 hospice patients are referred 'too late' for services, resulting in unmet needs. Families who reported having a loved one referred 'too late' were dissatisfied with the care received and reported more pain management problems.

SourceBrown University·JournalJournal of Pain and Symptom Management·DateJun 28, 2007

Another form to fill in

A study by CQU's International Program for Psycho-Social Health Research (IPP-SHR) revealed that standardised questionnaires in hospice practice negatively impacted upon patients' and carers' experiences and wellbeing. Informal conversation was seen as a flexible, sensitive, and consumer-focused alternative to questionnaire use.

SourceResearch Australia·JournalSupportive Care in Cancer·DateOct 25, 2006