Articles tagged with Patients Rights
The new section in JMIR Neurotechnology focuses on the responsible and ethical use of neurotechnology. Submissions welcome for original research, case series, theoretical viewpoints, and data-driven analyses on ethics and policy in neurotechnology.
The rise of consumer-facing health AI assistants is transforming healthcare access, offering users personalized medical workspaces and real-time lab result interpretation. However, concerns around data privacy and the risk of misdiagnosis highlight the need for caution in this rapidly evolving landscape.
Recent shifts in federal policy and funding have impacted hundreds of clinical trials designed to study disease burdens in underrepresented populations. The report highlights a systemic crisis in medical research, citing a disruption at scale that has affected over 74,000 participants across 383 trials.
A study by the Alliance Foundation Trials shows that combining immunotherapy and chemotherapy before surgery can help more patients with locally advanced non-small cell lung cancer undergo complete cancer resection, improving their long-term health. The treatment also led to high rates of lymph node clearance and successful surgical re...
The article analyzes the legal and ethical complexities of explaining AI decisions to patients, highlighting significant hurdles such as interpretability trade-off, automation bias, and literacy barrier. It calls for co-design partnerships, institutional support, and standards for comprehension to bridge this gap.
A new clinical study aims to improve communication between patients and families about genetic risks of colorectal cancer. The trial will compare two methods of sharing genetic test results with close relatives, with the goal of learning which approach helps more family members get necessary genetic testing.
US research reveals patients with duplicate medical records are 5 times more likely to die after admission and 3 times more likely to require intensive care. Researchers call for improvements in data integrity and health information management to boost patient safety.
Researchers developed a framework for building trust-based partnerships with Indigenous communities to study microbiomes. They worked closely with Matsés leaders and community members, incorporating cultural differences and transparency into their methods.
New research highlights the transformative power of digital technology in shaping the e-patient era, enabling active participation and co-production in healthcare. Key technological innovations have built upon each other, providing patients with unprecedented tools for self-care and interaction with the healthcare system.
A new study highlights the risk of patient organizations losing independence due to funding from pharmaceutical companies. Researchers propose establishing a single database to track payments made to patient groups, doctors, and hospitals to improve transparency.
A new study calls for the adoption of new research ethics policies to foster learning and discussion of ethical issues. The guidelines aim to shift from compliance-based ethics to promoting ethical norms and practices.
Researchers advocate for accessible breast cancer screening services for individuals with disabilities, highlighting physical barriers such as equipment accessibility and fragrance-free policies. They stress the need for social and procedural barriers removal through comprehensive training and resources.
A UK-wide evaluation found that nearly all (93%) of dying hospital patients had demonstrable unmet needs for palliative care. The deficit was more apparent in district general hospitals compared to teaching hospitals and cancer centres.
Projected health outcomes associated with Supreme Court decisions in 2022 suggest substantial harms to public health due to lack of COVID-19 workplace protections and revoked abortion rights. Nearly 3,000 excess deaths are projected over a decade.
A Canadian study found that eliminating out-of-pocket medication expenses for patients with cost-related nonadherence results in lower healthcare spending over three years. The analysis suggests that reducing medication costs could lead to significant savings in the overall healthcare system.
A review of 75 publications found significant knowledge gaps on health inequities affecting the LGBTQ+ community and minority groups, including American Indian and Alaska Native individuals. The study emphasizes the importance of investigating barriers to clinical studies and medical trainee recruitment in under-resourced areas.
A study of 2.4 million Medicare beneficiaries found that those enrolled in Medicare Advantage had lower rates of low-value care, including unnecessary tests and treatments. This study highlights the potential benefits of Medicare Advantage plans in reducing waste in healthcare.
Researchers analyzed 2.8 million adults with chronic disease diagnoses and found a correlation between adverse credit outcomes and rising medical debt. The study highlights the significant financial burden associated with chronic conditions.
A new study suggests that members of the public want to know if their health information or samples from their bodies will be used in research or to help develop new biomedical products. The study found that patients are more likely to want notification about research use of their health information than biospecimens.
A group of experts describe a decade of destitution and ill-health caused by the UK's hostile environment policies. The NHS employs teams that target vulnerable patients, delaying or withholding care, while thousands are wrongly turned away from services.
A recent survey found that while most clinicians and patients agree that transparency is essential, providers are concerned about added stress for patients due to complex reports. Patients want providers to contact them within 24 hours of abnormal results, but clinicians struggle with managing time and navigating data.
The Comparing Outcomes of antibiotic Drugs and Appendectomy (CODA) trial found that nearly 7 in 10 patients with antibiotics avoided an appendectomy within three months. By four years, just under 50% had the surgery, suggesting both treatments are safe and valuable to patients differently based on unique symptoms and circumstances.
Pharmaceutical companies in the Open Pharma collaboration recommend developing plain language summaries of peer-reviewed medical research articles. The summaries should be understandable, unbiased, non-promotional, and easily accessible. This move aims to make medical publishing more open and inclusive for all audiences.