Individuals with severe sickle cell disease express willingness to accept gene therapy risks for a potential cure. Gene therapies offer higher chances of eliminating symptoms and extending life expectancy, but also come with significant risks.
A new study at Aston University shows that children aged four and above consume 79% more calories when they are bored compared to a neutral mood. Children who were emotionally fed often ate five times more kilocalories when feeling bored.
A study found that COVID-19 transmission rates in child care centers were low, with only 2% to 3% of cases occurring within the centers. In contrast, household transmission was high, with 50% of children and 67% of adults contracting the virus once infected.
Research at Aston University identified four eating behavior patterns in children: 'avid', 'happy', 'typical', and 'fussy'. Children with 'avid' eating behaviors are more likely to be overweight or obese, while caregivers' feeding practices vary significantly across the four categories. The study aims to provide tailored advice for par...
A large cohort study found a significant association between adult attention-deficit/hyperactivity disorder (ADHD) and the risk of dementia. The study followed 109,000 individuals born between 1933 and 1952 and found that ADHD was associated with an increased risk of dementia.
People with dementia experience a rapid rise in unpaid and paid home care, and major erosion of net worth. Family members face significant demands, providing an average of 45 hours of care per month.
A new intervention for caregivers has been shown to reduce elder mistreatment of older adults with chronic illness, including dementia. The Comprehensive Older Adult and Caregiver Help (COACH) program provides personalized support to caregivers, reducing mistreatment rates from 22.5% to 0%.
A new NIH study suggests that a common child behavior assessment tool may be skewed by factors such as caregiver demographics and language. Researchers have identified less biased questions that can reliably capture childhood behavior problems across diverse backgrounds.
A new study reveals that 92.5% of cancer practices screen patients for distress, but only 16% routinely screen caregivers, leaving many at risk. The research team aims to understand barriers to caregiver screening and improve supportive care services.
A University of Oklahoma professor is conducting an ethnographic study on end-of-life care in two public palliative care wards in Mexico City. The study aims to understand the cultural and bioethical dimensions of death and dying, with a focus on improving palliative care practices.
A new three-year grant will provide specialized dementia services and supports to underserved communities in Broward County. The project aims to improve quality of life for individuals living with or at risk of Alzheimer's disease, as well as their family caregivers.
A new study found that Trump's election was associated with a 5-percentage-point decrease in well-child visits for children of immigrant mothers, compared to US-born families. This decline may have resulted in missed vital pediatric care, including vaccinations and health screenings.
A UCSF telecare program improves outcomes for patients with dementia and lightens the load on caregivers. The average monthly Medicare cost per patient was $526 lower for those in the Care Ecosystem compared to usual care.
A survey of 1958 NHS health professionals found that work-related stress, workload intensity, and staffing levels were the primary factors driving decisions to leave. The results highlight the importance of addressing these fundamental factors to improve staff retention in the NHS.
A recent NIH study found that caregiver pandemic-related stress was associated with increased child behavior problems, while higher levels of emotional and instrumental support reduced these issues. The research suggests that support for caregivers positively impacted child behavior outcomes across diverse racial and ethnic backgrounds.
A cross-sectional study across Japan, Ireland, and Finland found that the willingness to use care robots was highest in Japan (77.1%) and lowest in Finland (52.8%). A conceptual model explained the correlation between ethical perceptions and social implementation of care robots across three countries with different geographies, demogra...
Researchers are developing a community-based digital health intervention to increase vaccination uptake among children in rural and underserved areas. The project aims to empower community health workers to deliver education on vaccinations, overcoming the digital divide and addressing challenges faced by limited health workforce.
A recent NIH study found that caregivers' education levels and child ages played significant roles in determining their primary sources of stress during the COVID-19 pandemic. Caregivers with lower education levels reported more financial concerns, while those with higher education levels were more worried about social distancing.
A study of US families found that lower caregiver education led to financial strain and reduced adaptability, while younger children faced limited school support. Experiences varied little between urban and rural families.
A new study found that high-stress caregivers had higher klotho levels and longer telomeres in specific immune cells, which may provide protection against aging. In contrast, low-stress caregivers showed no significant associations between klotho levels and telomere length.
The new online course, “Understanding Spinal Cord Injury: A Course for Personal Care Assistants,” enhances training for PCAs to provide quality assistance services for individuals with spinal cord injury. The four-module course covers topics such as building relationships, managing blood pressure, and transferring clients safely.
Patients with caregivers at higher depression risk experienced poorer quality of life and increased emergency department use. Additional caregiving resources could improve patient outcomes in Parkinson's disease.
Research shows digital health platforms can deliver personalized nutrition services, decrease burden, and medical expenses. Facilitators include clear communication, training, and social interaction, while barriers include cognitive changes, technology difficulties, and privacy concerns.
The CMS Innovation Center has launched a new dementia care and payment model that provides comprehensive support for patients with dementia and their unpaid caregivers. The Guiding an Improved Dementia Experience model aims to improve quality of life, reduce caregiver strain, and delay nursing home placement.
Researchers found that Alzheimer's patients exhibit heightened sensitivity to light changes, which can contribute to 'sundowning' and disease progression. Light therapy could help manage these symptoms and potentially slow disease progression.
A study of 463 infants aged 8-36 months found that those with smaller vocabularies and poorer cognitive skills nap more frequently. Reducing naps for these children may not improve brain development, suggesting a need to re-evaluate sleep recommendations.
A Cochrane review reveals that organizational interventions can reduce the use of physical restraints in care home residents by 14%, without increasing falls or fall-related injuries. Supportive managers play a crucial role in implementing these interventions, which improve knowledge, skills, and strategies among frontline staff.
SourceCochrane·JournalCochrane Database of Systematic Reviews·TypeSystematic review·DateJul 27, 2023
A cross-sectional study found that caregivers of Brazilian girls with Down syndrome commonly expressed concerns about menstrual bleeding and sexual development, with most permitting their child to engage in romantic relationships. The study highlights the need for guidance on addressing difficulties related to menstruation, contracepti...
A University of Missouri study reveals that being asked to weigh during a doctor's visit negatively affects female patients' emotions and self-esteem. Researchers advocate for policy changes to educate patients about their rights and promote weight-inclusive healthcare.
A program integrated community health workers into patient outreach to improve health, doubling annual visits to older adults with type 2 diabetes and dementia. The program resulted in a 17% reduction in hospital admissions and an 11% decline in emergency room visits among homebound patients.
A new study finds that people with dementia account for nearly 7% of all emergency visits over age 65, with twice the rate of seeking care after accidents or behavioral crises. Better supporting dementia caregivers could prevent future emergency visits and reduce risks associated with antipsychotic medications.
A new study from Northwestern University found that only 13% of US parents and caregivers are aware of the 2017 NIH guidelines recommending early peanut introduction to prevent peanut allergy. Despite this, more work is needed to educate families and clinicians about the guidelines.
A Michigan Medicine study in Texas found that 61.4% of older adults with cognitive impairment are still driving, but one-third of caregivers have concerns about their care recipient's ability to drive safely. Researchers emphasize the need for open discussions between caregivers and healthcare professionals to ensure safety.
A $3 million NIH award will support an intervention aimed at improving health outcomes in Black youth with type 1 diabetes. The project aims to optimize family interactions related to diabetes care through mobile health technology, potentially reducing disparities in health outcomes for this vulnerable population.
The study found that relatives have an important role in home hospitals, providing emotional support and guidance during the treatment process. Relatives reported conflicting feelings about being involved, but ultimately felt satisfied with the experience and would contribute again if needed.
A study found that babies watching live music had higher heart rates and were more engaged than those watching recordings, even with identical audio. The researchers tracked the babies' responses using heart monitors and tablets, and noted that the live performance captured their attention for 72% of the show.
A new study sheds light on the intersection of Alzheimer's caregiving and the LGBT experience, highlighting common themes such as social isolation, financial security, and grief support. The research reveals that LGBT caregivers face unique challenges due to lack of family support and discrimination in care settings.
A UK-wide evaluation found that nearly all (93%) of dying hospital patients had demonstrable unmet needs for palliative care. The deficit was more apparent in district general hospitals compared to teaching hospitals and cancer centres.
A systematic review of 41 studies involving 7,800 participants found that psychosocial interventions led to decreased healthcare utilization in most services. The greatest reductions were seen among caregivers and individuals with mental illnesses, particularly when interventions were delivered one-on-one by health professionals.
A new evidence-based framework proposes integrating palliative care into neurology teams to address the total pain of neurologic illness, including psychological, social, and spiritual distress. This approach aims to screen for and prevent suffering by incorporating a palliative care model from day one.
A new patient-guided intervention using telemedicine has been shown to improve symptoms of fatigue, pain, and depression in dialysis patients. The Technology Assisted Stepped Collaborative Care (TĀCcare) trial found significant improvements in energy levels and pain severity that persisted for six months after treatment.
A West Virginia University study found that over half of surveyed faith community nurses and leaders reported moderate-to-high stress and compassion fatigue. The researchers recommend team-based approaches to support these individuals, emphasizing the importance of recognizing burnout and promoting self-care.
The ASHP Summer Meeting presented research on clinical pharmacists' impact on type 2 diabetes treatment intensification with GLP-1 receptor agonists. A study found 85% of patients received care from clinical pharmacists had their medication titrated to the first effective dose, compared to 12.5% without pharmacist involvement.
Dr. Maria Elena Bottazzi receives the award for her leadership in developing a patent-free open-source vaccine for COVID-19, which has been adopted globally and distributed over 100 million doses.
A team of researchers used MRI and audio recordings to demonstrate the association between caregiver speech and infant brain development. Infants who heard more words had slower-developing white matter, but eventually showed better linguistic performance when they began to talk.
A UC Riverside-led study reveals the Salton Sea environment is toxic, causing sulfuric smells, dust storms, chemicals, and fires that contribute to chronic health conditions like asthma and respiratory illnesses. The study's findings have important public health implications for vulnerable child populations.
A new study found that male infants make 10% more utterances in the first year compared to females, but this difference switches direction by the second year. The researchers suggest that male infants may have an evolutionary advantage due to their higher mortality rate in the first year.
A new study from the University of Kansas emphasizes the importance of including unpaid care work in economic statistics, highlighting women's significant contributions to the economy. The study aims to provide a more complete understanding of labor activity and inform equitable public policy.
A new study by UC Davis MIND Institute researchers and others finds that the M-CHAT-R/F screening tool is effective in identifying children with autistic traits, but it also flags many children incorrectly. The study highlights the need for clinical judgment and clear communication with parents about the limitations of the tool.
A study by UMC Utrecht shows that corona patients can measure their blood oxygen levels at home using a pulse oximeter, feeling safe and experiencing more control. This method does not increase GP visits or hospitalization but contributes to relieving caregivers and keeping healthcare affordable.
The Build Better Bones platform provides practical guidance on strengthening bones through targeted exercises and bone-healthy nutrition. The platform also offers helpful information for caregivers, including support with daily tasks and medical specialty knowledge.
Cancer caregivers from lower-income households are more likely to experience debt and work loss compared to non-cancer caregivers. This can lead to increased economic burden, stress, and a reduced ability to retire on time.
A nationally representative sample of community-dwelling adults found that stroke prevalence remained stable overall, but increased among men. The study's estimates underestimate the total burden due to institutional settings not included in National Health and Nutrition Examination Surveys.
A Brown-led research team found that four dementia-care interventions saved between $2,800 and $13,000 in societal costs and reduced nursing home admissions while improving quality of life. Non-drug interventions have been shown to be effective in clinical trials and can help people with dementia stay safely at home longer.
A recent review article highlights the significant impact of cancer on Hispanic patients and their caregivers, citing communication barriers, financial difficulties, and sociocultural issues. The study estimates 126,000 new cancer cases diagnosed yearly in Hispanics, placing a substantial burden on family members and friends.
Research on caregiving after neurotrauma and neurological disability emphasizes the need to address unmet caregiver needs, which can impact the quality of care provided. Studies found that brain injury caregivers experience higher burden, decreased physical and neuropsychological functioning, and lower mental health.
SourceIOS Press·JournalNeuroRehabilitation An International Interdisciplinary Journal·TypeObservational study·DateMar 3, 2023
A study published in the American Journal of Critical Care found that a single trained observer serving as a checklist prompter can accurately assess whether multidisciplinary rounds addressed key elements of the ABCDEF bundle. This approach enables customized, shorter checklists to streamline workflows and improve patient care.
Research from Lancaster University found that new caregivers during COVID-19 experienced a sharp decline in their own mental health, with the most significant impact occurring during national lockdowns. Existing carers also saw a decline in mental well-being, particularly during the third lockdown.
A Rutgers study found no statistically significant improvements in patient or caregiver anxiety, depression, or psychological distress in palliative care interventions. The researchers identified conceptual and methodological problems in the literature, including excluding patients with existing mental health conditions from studies.
A culturally appropriate model of end-of-life care is being developed in Ghana to address the scarcity of palliative care in low-resource communities. COMPASS Ghana aims to provide universal end-of-life care by the end of the decade, utilizing a compassionate community approach that involves patients and caregivers in care provision.