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Guidelines for the creation of accessible consent materials and procedures: Lessons from research with autistic people and people with intellectual disability

The article presents guidelines for designing consent materials and procedures for autistic adults and people with intellectual disability, highlighting the importance of multiple modes to deliver content. These guidelines aim to improve accessibility and respectfulness in research with individuals on the autism spectrum.

SourceMary Ann Liebert, Inc./Genetic Engineering News·JournalAutism in Adulthood·TypeContent analysis·DateFeb 27, 2025

Recognizing Indigenous rights in environmental data

A team of researchers recommends incorporating principles like collective benefit and ethical governance into ecological data practices to align with existing data infrastructures. They suggest establishing collaborative relationships with Indigenous rights holders and exploring how data can be aligned with Indigenous expertise and wor...

SourceDartmouth College·JournalNature Communications·TypeCommentary/editorial·DateFeb 5, 2025

Understanding bias and discrimination in AI: Why sociolinguistics holds the key to better Large Language Models and a fairer world

A new study aims to address bias and discrimination in AI by leveraging sociolinguistics. By incorporating diverse dialects, registers, and periods of language into training data, researchers can improve the performance of large language models, making them more accurate and reliable. This approach also promotes ethical and socially aw...

SourceUniversity of Birmingham·JournalFrontiers in Artificial Intelligence·TypeData/statistical analysis·DateJan 13, 2025

African voices in ink

The book uses a 'history from below' approach to center the voices of petitioners, revealing how they framed their demands using language like justice, rights, and equity. Through over 4,000 petitions, Dr. Bright Alozie shows the significance of this genre in shaping colonial society and influencing decision-making.

The ethics of biobanking for conservation: BioRescue adjusts ethical assessment tool for the use of genome research banks

The BioRescue team evaluated ethical considerations for biobanking, including animal welfare, sample ownership, and good scientific practice. It introduced a modified ETHAS tool to provide a structured approach for biobank managers, enabling them to make wise decisions on conservation and research.

SourceLeibniz Institute for Zoo and Wildlife Research (IZW)·JournalCryobiology·TypeContent analysis·DateSep 13, 2024

UVA Engineering receives $900,000 grant to create character-building initiative

The University of Virginia School of Engineering and Applied Science will create a character-building initiative with the new grant. The ECSI aims to develop future leaders who are prepared and motivated to apply values in professional contexts. UVA Engineering is committed to integrating character education into its undergraduate curr...

A model of Collaborative Ethics to guide translational research from fundamental discoveries to real-world applications

The Collaborative Ethics model, developed by Jeantine Lunshof and Julia Rijssenbeek, aims to address ethical implications of emerging technologies from fundamental discoveries. By integrating philosophical and ethical reassessment into research processes, the model facilitates decision points for researchers and ethicists.

SourceWyss Institute for Biologically Inspired Engineering at Harvard·JournalNature Methods·TypeCommentary/editorial·DateJun 25, 2024

IOF position on scientists and societies operating in conflict zones

The International Osteoporosis Foundation (IOF) has released a position paper recommending rules for partnerships with member organizations and scientists operating in conflict zones. A survey of IOF member societies found strong consensus towards maintaining a neutral stance, supporting scientific collaboration and research.

SourceInternational Osteoporosis Foundation·JournalOsteoporosis International·TypeCommentary/editorial·DateJun 24, 2024

Why students cheat in online exams

Researchers at the University of Cologne found that students' negative perceptions of online exams can lead to increased cheating behavior, while positive perceptions and moral norms can reduce it. The study suggests that lecturers should consider students' psychological factors when designing courses and exam formats.

SourceUniversity of Cologne·JournalJournal of Computer Assisted Learning·TypeSurvey·DateMay 13, 2024

Geisinger College faculty, graduate students publish paper shining light on conflicts of interest in guidelines for psychiatric care

A study published by Geisinger College faculty and graduate students found that 55% of DSM-5-TR panel members received payments from industry, highlighting the need for stricter standards. The researchers argue that individuals with financial ties to industry should not have decision-making authority in guideline development.

SourceGeisinger Health System·JournalBMJ·DateJan 25, 2024

Researchers measure global consensus over the ethical use of AI

A systematic review of global guidelines for AI use found that most valued principles such as transparency, security, and justice. However, fewer guidelines prioritized truthfulness, intellectual property, and children's rights. Most guidelines were normative but lacked practical methods for implementation.

SourceCell Press·JournalPatterns·TypeMeta-analysis·DateOct 13, 2023

Ethics rules needed for human research on commercial spaceflights, panel says

A panel of experts recommends new guidelines for conducting ethical research on humans aboard commercial spaceflights, prioritizing social responsibility and scientific excellence while minimizing risks and balancing benefits. The guidelines aim to ensure that research benefits society at large and respects participants' autonomy.

SourceUniversity of Washington School of Medicine/UW Medicine·JournalScience·TypeCommentary/editorial·DateSep 28, 2023

The latest in science and medical advancement in otolaryngology-head and neck surgery to be presented at AAO-HNSF Annual Meeting

The AAO-HNSF 2023 Annual Meeting & OTO Experience will feature groundbreaking clinical research and professional development emerging within otolaryngology. The meeting will showcase the latest scientific oral presentations on various topics, including Otology, Laryngology, Endocrine Surgery, and more.

With advances in in vitro models, group proposes refined legal definition of an embryo

A group of biologists and ethicists suggest adding clarity to ongoing research using embryo models to refine the legal definition of human embryos. They propose a new definition that focuses on what an embryo can become rather than how it came to be, allowing for improved evaluation of models and potential future recognition as embryos.

SourceCell Press·JournalCell·TypeCommentary/editorial·DateAug 17, 2023

Ethics & Human Research, July-August 2023

The Hastings Center's Institutional Review Board (IRB) has implemented an evidence-based intervention to address racism and promote equity in biomedical research. The IRB now requires researchers to define racial and ethnic classifications, state whether they are describing or explaining differences between groups, and provide justific...

SourceThe Hastings Center·JournalEthics & Human Research·TypeExperimental study·DateJul 10, 2023

Policy Makers Aplenty: Researchers and citizens play positive roles in the governance of human genome editing

A study by Osaka University researchers reveals that various stakeholders, including experts, the general public, and patients, can participate in genome editing governance. This collaboration enables more effective policy-making, with citizens engaging in new initiatives such as interactive events.

SourceOsaka University·JournalAsian Bioethics Review·TypeContent analysis·DateJun 27, 2023

Are emoji helping your physician communicate better? What new research tells us about emoji use among hospitalists

A recent study published in JAMA Network Open analyzed emoji use among hospitalists and found that emojis do not cause confusion or affect professionalism. The researchers analyzed thousands of lines of messages and discovered that emojis often serve a linguistic role, adding new information to the conversation.

SourceIndiana University School of Medicine·JournalJAMA Network Open·DateJun 13, 2023

Ethics & Human Research, May-June 2023

An Australian interview study suggests that advance research directives (ARD) can facilitate informed consent for people with dementia. The study also highlights the importance of family members as proxy decision-makers. In another article, a competency framework is proposed to improve health research ethics education.

SourceThe Hastings Center·JournalEthics & Human Research·TypeSurvey·DateJun 12, 2023

MU researcher finds similarities in COVID-19 mortality rates between Canadian provinces and American states before vaccines were available

A study by University of Missouri researchers found similarities in COVID-19 mortality rates between certain US states and Canadian provinces, highlighting the importance of localized public health strategies. The findings suggest that factors such as population density, age, and socioeconomic conditions may have contributed to these s...

SourceUniversity of Missouri-Columbia·JournalCanadian Studies in Population·TypeData/statistical analysis·DateJun 1, 2023